Posts by Rosemary McDonald
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Access: Social media, disability…, in reply to Sacha,
I’d tread carefully. Or roll carefully.
We always do.:-)
While I was mulling over this issue, back then, being torn between a 'rights' based approach and my natural tendency towards practicality and pragmatism...this popped up...http://attitudelive.com/blog/amy-hogan/amy-hogan-why-i-believe-some-parents-should-have-right-sterilise-their-disabled-child
Amy Hogan writes with refreshing independence and genuine insight.
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Access: Social media, disability…, in reply to Sacha,
To inject a touch of humour into a very serious issue....
Peter had not quite finished growing when he broke his neck, Within a couple of years he had reached his full height of around 6'4"...and weighed about 75kg. (A No. 8 he was, in his walking days) His Mum, obviously so over trying to wrestle this largish lad with very long and unruly legs (lots and lots of involuntary spasm) had a brilliant idea.
Drop him on the railway crossing closest to the hospital, have an ambulance at the ready, and let the train do the necessary. Problem solved. Peter reckons it wouldn't have bothered him at all. Forty years down the track we use those spasmy legs to pressure relieve and for balance during transfers. I was quite horrified at the thought of 'amputation for convenience', but he still wouldn't have a problem with it.
I guess its the same for many interventions...like various forms of tube feeding. For some its a vital necessity, others have formed an advocacy group to help wean children off them. Urinary catheterisation and colostomies....very strong and opposing feelings within affected communities.
I guess it comes down to what improves the quality of life of the individual.
What enables.
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Access: Social media, disability…, in reply to Sacha,
oxytocin
powerful stuff, oxytocin.
again, is this unnecessary medical intervention?
A thread, methinks.
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Access: Social media, disability…, in reply to Sacha,
quite. http://www.radionz.co.nz/news/national/288193/no-regrets-over-stunting-daughter’s-growth
http://www.voxy.co.nz/health/disability-rights-commissioner-calls-law-change/5/235586
An entire thread of its own, methinks.
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Up Front: Fringe of Darkness, in reply to ,
was a state run hippy community. Which was set up by the New Zealand government that was allocating state owned land for hippies to colonize
https://en.wikipedia.org/wiki/Ohu
To assist people in becoming self-sufficient from the land.
To enhance people's spiritual and social wellbeing.
To reconnect people to the land.
To give people a chance to develop alternative social models.
To provide a communal environment as a potential antidote "to the ills of modern society[...]" (Hayward 1981 p. 173.)
The promotion of the virtues of a simpler life (Hayward 1981, p. 173).
To be a place of healing for participants as well as for society as a whole.[3] -
Access: Social media, disability…, in reply to Hilary Stace,
Kirsty Johnston has written about
One awesome journalist/reporter/writer.
Consistently produces sound, solid, quotable work.
(P and I still feeling a tad guilty we didn't do a piece with her about spousal caring. We didn't want to do the video thing....and we have media trust issues. Not that we didn't trust Kirsty.)
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Access: Social media, disability…, in reply to Russell Brown,
We’ve got a guest post about the problems with planned power cuts coming. The people most affected don’t get consulted.
That will be something to look forward to. Even when they do 'consult'...its largely pantomime.
Is no-one else totally pissed off that "the same shit with schools etc that we had to deal with 15 years ago"..is still happening?
Russell...this Access site....worth it's weight.
When I win Lotto...you're on my 'recipients of my beneficence' list.
In the meantime...ta.
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Access: Social media, disability…, in reply to Sacha,
And such a thing is needed now, more than ever.
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FWIW...the impression I got of the "hippy movement" (with some peripheral family involvement) was that there were few or no 'rules' per se. Necessary decisions were supposed to be by general consensus. There was not supposed to be anyone 'in charge'. Folk did their own thing...man.
No so with CP. Bert was the Boss...
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Access: Social media, disability…, in reply to Hilary Stace,
I am reclaiming the word ‘entitlement/s’.
Onya, Hilary!
How can we help?
Set fire to ourselves on the steps of the Beehive perhaps....start our own 'Disability Spring'?
I am so far gone down the road to complete and utter cynicism...
What is needed is non government funded disability advocacy...the steel toe cap booted variety...not the wishy washy 'we're better off sitting at the table' rubbish we have now.
Imagine....those for whom disability has real impact on their daily lives...and my guestimate, based on the MOH data would be in the region of 30,000 people....
if each of these people subscribed, at a cost of $10 each, to such a group....that's $300,000. That is someone full time in Wellington getting up the noses of the MPs, sitting in on any Select Committee making damn sure that our voices are heard. Lobbying. Lobbying.
Then another couple of full timers building and maintaining a website that gives a real pan disability voice. Organising regional meetings....ensuring that the word gets to ALL....not just the 'insiders'.
Claim back independent advocacy.