Posts by Rosemary McDonald
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Access: How many agencies does it take…, in reply to Lucy Telfar Barnard,
when the average cost of a night in hospital is well over $4500.
I'm not questioning this figure....but have you a source for that?
I'll have a read after my eyes have stopped watering.
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Access: Social media, disability…, in reply to Angela Hart,
Has a reason been given for scrapping the Disability Survey and extending the data collection interval to ten years?
Obfuscation. Cloud with issue with insufficient and arbitrary data and They can make all manner of wild and inaccurate claims and costings and declare...
"Eek! Shriek! Funding these supports will bankrupt the nation! We must rush to pass legislation to place responsibility on family to provide support! Freeing up limited funding for those with no 'natural' supports!"
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Speaker: Are there opportunities within…, in reply to Angela Hart,
I don’t believe it’s possible to have an obese and fully breastfed baby,
To be fair....she(the nurse!) was a very tall, very thin person, who had read about 'brown' fat cells and was convinced that my wee mite was loaded with them. Lurking there they were, ready to turn into hard, immovable adiposity. I was, for want of a better expression...a damn fine cow. I should have bottled and sold the stuff I produced. My babies thrived. As they are supposed to. Hmmm....see, I didn't take it to heart at all!
It hurts when a person is criticised for their weight...cue eating disorders on either end of the scale.
Another 'education' aspect...we should be teaching people to cook. Cheap, quick meals. Tasty. Because taste should be what it is about. Give people well cooked, tasty, fresh food and they'll wonder why they ever stomached that crap from You Know Where...who will remain un-named because they'll read this and sue my ass!
Honestly...I walked past one of those places the other day...the smell was atrocious!
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Access: Social media, disability…, in reply to Hilary Stace,
It is non therapeutic interventions which I have an ethical issue with
I'm really struggling with the whole stunting of the growth thing. I can speak with some authority on this particular issue. I agree...it can be difficult or even impossible to go some places, do some activities...and heaven knows the 'system' ain't going to make it any easier. But I am not comfortable with engineering the child rather than the environment.
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Speaker: Are there opportunities within…, in reply to Hilary Stace,
Blaming children and their mothers isn't an effective strategy.
Hah! My daughter was less than a week old when I took her into the geriatric hospital where I worked until a week before she was born. A well covered and fully breastfed child. The bollocking I got from the charge nurse for having an obese baby...I'll never forget it.
A neighbour spends six months of each year in the US. He reckons the most depressing sights are at the fast food joints where the doors have all been widened to allow admittance to the oversize mobility scooters driven by the morbidly obese.
The scooters have big trays to hold the food, and cup holders for the buckets of fizzy drink.Tax sugary processed foods. Decrease GST on fresh fruit and veg. And fresh meat.
Interesting that this project...http://www.healthystartworkforce.auckland.ac.nz/en.html
is not only going encourage healthy eating during pregnancy....but also supply the mums to be with pro- biotic capsules....???
Now, this is new. And 'alternative'. So what has changed in our guts, in our diets, that the medicos decide that taking probiotics is going to help turn the obesity tide?
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Access: Social media, disability…, in reply to Hilary Stace,
Peter is an adult with a voice so doesn’t apply.
We were talking about this as we drove up to Auckland today so himself could have yet another invasive procedure to ensure his non functioning bladder drains.
We were talking specifically about babies with spina bifida. First surgery will be to install a shunt to drain excess cerebrospinal fluid from their brain, and maybe close the meningocele. Then, there will be splints, surgery, botox jabs to try and keep paralysed feet from contracting. Then there will be all manner of invasive stuff done to never-having-functioned bladders (more complicated than for an older person becoming paralysed). Some of these procedures work....some don't and have to be tweaked and changed. (We were speaking with an older woman with sb the other day...we came to the conclusion that the urologists had been experimenting on her. Really radical surgeries that were supposed to fix all...and she's worse off. )
Much of this stuff is done before the child is able to consent. Much of this stuff is quite radical and more often than not irreversible. All of the consenting parents have to be guided by the medicos...Without quite extreme intervention, the child could very possibly die. Big call. I don't think that as much research goes into improving outcomes for kids with sb in this department (especially for the girls)...and with the overwhelming % of parents opting to terminate when the baby has sb....
P.S. When Peter had his accident he was twenty. Old enough to consent to very invasive and irreversible procedures....but in traction and in a coma. So, his parents must have consented. He presumes. He has no resentment...he would have died had they not allowed the surgery to go ahead. Having said that...in 1970, the concept of "informed consent" was in its infancy.
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Access: Social media, disability…, in reply to Hilary Stace,
right to bodily integrity.
....and there's another curly one right there.
Do the stalwarts on DPA NZ facebook still rise up in arms at yet another article in MSM about some kid's family fundraising for an extra cochlear implant?
We would read those comments and wonder if perhaps Peter should divest himself of the various technologies that enable him to survive....to satisfy the 'disability rights activists' . So he wasn't a traitor to the cause.
This is a very difficult and finely balanced area. Extreme views from both sides should probably take a breath or two. :-)
There is a strong disability(esp. ACC) and carer community in Dunedin. ODT have always done a sterling job of getting their issues out there.
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Up Front: Fringe of Darkness, in reply to chris,
this thread…
is very confronting.
Raises memories and issues and is forcing some of us to travel back in time to when we were vulnerable and at risk and no-one was there to care for us the way we had the right to be cared for.
I'm choosing not to take umbrage at the reactions of others who may have been there too.
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Now here's a curly one....
http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11538130
The young man has Asperger's...is it appropriate for him to be held responsible for his on line porn peddling?
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Access: Social media, disability…, in reply to Hilary Stace,
blink technology
A young man of our family's acquaintance, with CP (non verbal) used such a method.
He could blink, and cast his eyes up to the left. He could consciously move one arm... slightly. Sometimes we would spell words, he had a picture board, or we would do this 'twenty questions' thing, with him making 'yes' or 'no' responses.
Not very high tech....but very, very effective method of communication. The kid had an eidetic memory, and a very wry sense of humour. He loved to set us a 'problem'...for want of another word....and watch us all wrack our brains over the next few days trying to figure out what he was on about. One time, he even 'got' his mum (who had done the groundwork for his language acquisition) and a week after he had returned home she had to phone us up to ask "why is my son the father of a chicken?".He did well at school, left home to live 'independently' in another town, and sadly passed away not long afterwards.