Posts by Hilary Stace
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Access: Autism, ABA and being a bad mother, in reply to Virginia Brooks,
I love the way Amanda Baggs challenges stereotypes about autism (I think she uses that term herself) , particularly the need to use spoken words.
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Several of us have met Temple Grandin. She has been to NZ at least once. The time I met her was a few years ago when she gave a seminar in Wellington for Autism NZ. She was coming here for McDonalds to promote humanely killed meat, and offered to do the seminar, which was very popular. She's a generous woman. The day was a fascinating insight into her world and how she saw it, and the afternoon an insider's view of autism drugs and symptoms. All very frank and practical. She was very chatty at the breaks and at the end said she didn't like eating alone and would anyone like to join her for dinner. I couldn't. But there are some aspie fans out there who are still smitten. I hear she has put out a new autobiography which should be interesting.
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The wonderful Autism and Oughtisms blog weighs into the discussion
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Hard News: Autism and celebrity, in reply to BenWilson,
There is also a downside of making already vulnerable parents feeling worse that they can't provide all sorts of expensive or time consuming interventions, when such interventions are promoted as essential to progress.
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Hard News: Autism and celebrity, in reply to Darren Walker,
I am also a parent of an autistic son, so I understand that you need to do whatever appears to work to address whatever is framed as the problem.
But my question is : how do you rationalise that lack of a 'control' child' to measure progress against?. ie how do you know that the same progress wouldn't have happened just with the normal development trajectory, engaged parenting and wider family input, inclusive education, welcoming community activities or any other variables?
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Access: Walking Is Overrated, in reply to Martin Sullivan,
Martin, your link doesn't work - here is a link to the pdf. Well worth reading - it is very entertaining.
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Thanks Kate. I remember a very good presentation you gave on ABA and RDI in Wellington a few years ago. I liked your enthusiasm for young autistic people. I think that is part of the secret.
To me ABA seems to me to be about adults imposing their views and expectations about children and behaviour. Training. Work . RDI seems much more child centred, fun and about working with the child's own interests. If I was an autistic child I know which one I would prefer and respond more positively to.
And hello Wendy. For those who don't know her Wendy is one of the most knowledgeable people there is about autism.
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Thanks Russell. I see that Geoff Sewell is playing in Wellington tonight. (And disclosure - I have helped with an autism fundraiser associated with one of their earlier visits soon after their daughter had her 'tragic' diagnosis).
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It I interesting that the company that makes the bionic/robotic legs has not been the stand out (pun) success they anticipated. I have a friend with MS who seriously contemplated them (and could probably afford them but now has a chair that stands him up when he needs to, which suits his needs much better) and have seen them demonstrated enthusiastically by young fit paralympians. But they seem to be mainly promoted by those who assume everyone wants to walk, and feel uncomfortable about disability generally.