(that is a story for the memoirs, maybe).
There must be some use for the 2x60l plastic crates of printouts we've managed to accumulate over the years. Just the OIA request proceeds alone take up half a crate. Absolutely amazing how much space seems to be needed to essentially say nothing. And then there are the documents I printed out instinctively...only to find they had disappeared from the web since I downloaded them. The information we had to collate for the case is quite spectacular.
Department of Mental Hygiene.
I'm thinking such a department sounds like a fine idea.
I have no idea.
I guess there will be some official public announcement any time soon, though how much detail I don't know. Confidentiality and all that. ;-)
Believe it or not Sacha, that bit of news had passed us by. Somehow.
This case has been settled out of court.
This is good news for most of us as hanging around in court for weeks was going to be very difficult.
OTOH, yours truly was looking forward to listening to the arguments from the Ministry. Again.
Something new, perhaps?
Anyway, even if we were drinkers we would not be celebrating just yet.
That treacherous knife in our backs that is the Part 4 amendment to the Public Health and Disability Act has to be repealed, and
.... all family members who are carers are paid on the same basis as are other carers, and that family members who are carers be entitled to make complaints of unlawful discrimination with respect to the State party’s family care policy.
Like what the UN Monitoring Committee said.
All the best with yours.
So, with very little fanfare (and I would have missed it were I not looking for it) the Mystery of Health published the report into the Targeted Engagement on Funded Family Care.
I was torn between reading those publications and reading the report into the Thompson and Clark inquiry. I suspicion brain has reached boggle point.
However. Jo Esplin and the team had a very short time frame for doing this work and they have produced a surprisingly comprehensive report that when read with the survey results provided AND the Paid Family Care Discussion Paper published in April present the very accurate picture that all is way less than rosy for disabled Kiwis and their chosen family carers.
In fact, it's pretty shit really.
The report writers acknowledge the level of cynicism (guilty) and do present some options for Sorting This Shit Out...but I fear there will be mere tinkering.
More later maybe.
Don't. Do. Christmas.
The most difficult thing about not doing Christmas is having to explain to others why it is that one is immune to this temporary insanity.
Hope you all get better soon.
Well done Fiona and team.
A table top, which was not a product in its own right, could not be exported and logs with surface carving were unlikely to meet the definition, the court ruled.
Chuckling going on in the whare...
A couple of years ago we made a complaint via an advocate about the "services" rendered by our local NASC.
After some exchanges (surprising what they're willing to put in an email ;-) ) we had a meeting up at the Hospital twixt us and our advocate the NASC manager, the DHB manager and a leading rehab clinician. We recorded this meeting.
With the most adroit slight of hand they managed to completely dismiss our complaints and imply that Peter was reluctant to participate in a needs assessment.
More chuckling in the whare.
Peter has had more assessments than most in the 48 years since breaking his miserable neck, and has cooperated fully with all of them.
He did however remind the DHB manager of the time that the assessor's area of expertise was intellectual disability and they had no knowledge of spinal impairment, much less tetraplegia.
He told the DHB manager that he would be administering a wee test of his own to the next assessor and if they failed to display an acceptable knowledge of tetraplegia he would consider them unfit for purpose and ask that another, appropriately experienced person was sent.
"But that would be declining service!" DHB manager sputtered....
You might have the money for high quality chocolate but there are no specialty chocolate shops in the region where you live.
Marks suggests an early warning score system as a measure to prevent further deaths...
Another preventative solution could be an early warning score system, that collated information from hospitals, GPs, disability support services, school attendance records, and Oranga Tamariki records.
The system would record any increase in GP visits or phone calls, a change of primary care provider, an increase in emergency department visits, reduced use of funded supports, a decrease in attendance at school or adult day school, or escalating behaviour in the individual or their caregiver.
...which is an excellent idea providing "reduced use of supports" is carefully examined. To be seen as a risk factor of harm when the available funded supports are not fit for purpose would be totally wrong.
Already 'declined service' (because of unsuitability or inappropriateness) appears on MOH;DSS paperwork to promote the false narrative that they did try really really hard to satisfy the eligible person's requests....but the person or their whanau were just too damn picky.
Increase in GP or Emergency Department visits also is not necessarily an indication that the person is at risk of harm from the family carer...it could mean that the GP and/or the hospital had failed to diagnose and treat promptly. As what happened with Ruby.
Those bastards at the Misery will never admit their failures.