Posts by Rosemary McDonald

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  • Access: Social media, disability…, in reply to Kumara Republic,

    I hate to invoke Godwin, but nothing else can sum it up more effectively.

    Yep. Having spent the past eight years or so tracking the disability $$$ and reading the narrative that accompanies each new happy clappy 'don't we just love the disabled' document I've noticed a creep of the use of the word "sustainability". Even the Spinal Cord Impairment Strategy, which dealt largely with ACC clients (who are the 'worthy' disabled with legislated entitlements), used the expression "long term liability".

    This really, really concerns me.

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…,

    I am actually feeling quite ill after reading through that lot, and god forgive me, counting the up/down votes. The horrible smell could be the old dog at my feet farting....

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…,

    I don't know why I do it, but over on the right....http://www.kiwiblog.co.nz/2015/10/a_difficult_decision_for_parents.html

    Farrar fans are in full flight. The "discussion" rapidly degrades from

    There cannot be the slightest shadow of doubt that the parents have the best interests of their daughter at heart and that they love her dearly.

    It’s outrageous for the HRC or a social workers to argue that a judge could possibly know better than the parents.

    to ....

    Didnt I hear this morning that some fucking idiot has applied for the “right” of this baby in a body to be “allowed” to grow to adulthood? Someone tell me I am wrong…

    to....

    The child does have a very limited quality of life. Growing into puberty and beyond is really quite meaningless to someone who is a vegetable.

    and...

    The options are if the parents dont want to spend the next fifty years caring for a human vegetable mandk?
    Starve it to death.
    Stick it in an institution for the rest of its short life .
    Neither are any better and in many ways are worse than euthanasia.
    It can not consent mandk because it is incapable of thought it only has basic reactions to physical stimuli.

    and to top it off...a 'logical progression' argument for euthanasia of disabled people...

    The child can not respond to its name and has no ability to connect the name to itself or recognize others .

    What do you suggest should happen mandk if the parents should decline to care for it or due to a change in circumstance can no longer do so?
    Chuck it into a hospital ward to be left to rot for as long as it lives ?There is not that much love or attention to go around in such places as well as a high probability that abuse of some sort will happen .The child will need constant care that it is incapable of responding to in any way.
    I say that the choice of euthanasia should be available to the parents and medical community if they believe it is the best option
    That doesn’t mean I think we should kill it.

    If this is the commentary from the Ruling Right, methinks the slope is slippery already.

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…,

    "At last we consented to the doctors giving her a shot of morphine, ..."

    From one of the stories from ....http://aim.org.nz/aspirations/

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…,

    Reading the article by Donna Chisholm, linked to above, I was grieved to read that the Hoopers were motivated to stunt their daughter's growth because it is much easier to navigate this world as a helpless dependent child, than as a physically impaired adult.

    I guess that's a big fail on 'community inclusion' for those with significant impairment.

    One could quite rightly make the argument that perhaps the Hoopers should get out more and see that people with disabilities are participating in lots of activities in the community....but the truth of the matter is that it requires a shit ton of effort to enable this. And Charley is covered by ACC, who are infinitely more inclined to fund equipment for mobility in the community.

    How many decades have disability activists tried to get local and central government to truly embrace the Standard?

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…, in reply to Hilary Stace,

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Hard News: A Stand for Quaxing,

    Aha! "Quaxing"....took a while. Hamilton 1979-198?....a much younger me hurtling around the town on my much loved Raleigh Arena 10 speed. Aka..."The Green Machine". The weekly shop with panniers, rack and backpack. No worries.

    Biggest issue was rush hour traffic since Hamilton streets can be quite narrow. One of the river bridges was so narrow that we bikies would spontaneously bunch up and claim the left lane. A schoolgirl was knocked off her bike and killed on that bridge, so it has been widened since.

    Plastic coated chain with combination lock....but more often than not just pop her on the stand outside the shop. Back then, you could count the number of varsity students who had cars on one hand...we all had bikes. Today....the complete opposite.

    Sadly, some miserable sod decided the Green Machine, out of all the other much finer looking specimens, was the one he wanted to steal from the racks underneath the varsity library. I howled.

    And bought my first wee car.

    The Green Machine was recovered during the local constabulary's yearly dredge of the favourite dumpsites in the River.

    I reconditioned her and sold her on.

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Envirologue: Too Big to Fail – Why…, in reply to Alfie,

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…, in reply to Hilary Stace,

    I'd like to see independent advocacy for ALL children and vulnerable people.

    I'd also like to have firmly enshrined rights, and those entitlements Hilary, before these conversations get serious. Chuck in there talk about doctor assisted suicide.

    Decisions of this nature cannot be influenced by fear of further reduction in access to vital supports.

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

  • Access: Social media, disability…,

    Phillip Patson blogs about the tension between principles and reality....

    http://philippatston.com/blog/child-s-medical-treatment-highlights-tension-between-principles-and-reality/

    and from the link that Joe put up...

    "“There are well developed ways to manage severely disabled people in New Zealand and to assist family members,” the panel wrote. “ To consider alternatives raises the concern that these are less than ideal .”

    The last sentence definitely fits into the "no shit, Sherlock." department.

    Waikato, or on the road • Since Apr 2014 • 1346 posts Report

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