Posts by Angela Hart
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Power outages are a problem across the ditch as well…
https://au.news.yahoo.com/sa/a/30381918/disabled-sa-man-dies-in-blackout/ -
Not a real possibility due to being one of an almost Siamese pair, although we would be jointly terrific reps!
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Access: Social media, disability…, in reply to Rosemary McDonald,
Along with many others I sometimes have trouble remaining positive and hopeful of genuine positive change. Do you think it's worth getting involved? http://www.odi.govt.nz/nzds/2016-revision/reference-group/index.html#Nominationform2
The view from outside of these departments and advisory groups seems to show a system which sidelines those with expertise and passion; when they are involved with officialdom their hard work generates no practical result. They're not allowed to speak out about the workings of the group, often, it seems to me, they are appointed to be muzzled and hamstrung.
I'd like to be wrong.
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It's OIA for me with Campbell Live or similar second
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Expect the report to be released over the Christmas/New Year holiday period.
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On the plus side, there are success stories, usually less to do with the state and more to do with the whanau
http://www.stuff.co.nz/life-style/well-good/inspire-me/74743244/disabled-man-pens-heartwarming-letter-thanking-his-mother-for-giving-him-life -
Circular delivery rates are extremely low, probably because the work is traditionally done by children who don't qualify for either minimum wage or youth rates because they are too young. It is exploitation. I seem to remember some efforts to get better rates, but clearly they got nowhere.
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Access: Social media, disability…, in reply to Rosemary McDonald,
No record of these conversations. No quick phone call while I was in hospital to check that Peter was being properly supported in my absence. No offer of any home help or support while I was recovering from major abdominal surgery. Bearing in mind the support carer we had hired refused to do any transfers.
All reinforces my slowly acquired learning that my NASC is not primarily concerned with assessing and co-ordinating necessary disability support. Its primary function is to control MOH disability expenditure. Its ostensible role as an assessment agency would be laughable if the consequences of its actions and inactions were not so bloody awful.
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Access: Social media, disability…, in reply to Rosemary McDonald,
It is very, very difficult to find out exactly what your SNL is, or how many hours the “independent assessor” sent by your NASC has recommended.
It is. Very difficult. And yet this information is one of the three core tasks of the NASCS (1 Assess 2 co-ordinate 3 budget). You'd think this information would be automatically communicated to clients.
The only place I've seen which states that it should be is para 13.2 of the funded family care policyThe amount of unpaid disability supports provided to a disabled person will be recorded in their support plan along with the planned paid supports.
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I'm pleased to report that the DHB has now reimbursed the generator hire cost. I shall invest in an inverter and a battery.