Posts by Angela Hart
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You can make a submission regarding the use of seclusion and restraint in schools here
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Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
Dr Cullen wants to see a drastic overhaul of services to make them more straightforward and bring them under one state agency.
I think the one agency thing is long overdue, but it cannot be the MoH and it cannot employ people from the MoH because of their generally entrenched prejudice and their inappropriate attitudes to disability.
A stand alone agency would only have credibility if it was a shared enterprise with ALL of the disability community- not just the able disabled, and did not employ people who have been involved in the disability sector for years and done nothing worthwhile.
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Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
For people with very high and complex needs, the disability sector and Ministry of Health-led new direction of “choice and control” is not going to work, Dr Cullen says.
“This choice thing is a nonsense, and it is to the detriment of our most vulnerable.
Hear hear, but will the MoH hear and act? It has chosen not to for a very long time.
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Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
Some providers are turning high-needs people away rather than bear all the risks and responsibilities, Dr Bennie says.
It's great to see professionals recognising the problems which the Ministry responsible continues to ignore or sideline.
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From the link above:
Moran was unharmed but shaken by the 7.8 magnitude November 14 earthquake, which struck just after midnight and felt strongly in the upper South and lower North Islands.
"It was pretty scary. It is really scary when you can't get out of bed and the power goes off, and you're reliant on some type of breathing machine," Moran said.
He needed to use the breathing machine when he was lying down, he said.
"My wife had to dress me and get me into my chair."
He asked his wife Sharon to turn off the water and gas and they stayed up until 3am, debating whether or not to leave the house.
If he didn't have a partner......
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The issue with emergency back-up for breathing machines continues....
http://www.stuff.co.nz/marlborough-express/news/86965325/marlborough-disability-register-proposed-for-disaster-response -
Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
NASC must use the ICARe process to determine the need for direct physical support (hands on support needs) at all times ensuring that natural supports (not considering lifestyle choices such as full time work) are included in the support plan. Funding will be based on assessed support hours and will be based on core staff costs.
makes sense if you take out the words in the second set of brackets
NASC must use the ICARe process to determine the need for direct physical support (hands on support needs) at all times ensuring that natural supports are included in the support plan. Funding will be based on assessed support hours and will be based on core staff costs
I can't make sense of it with the second set of brackets included. Can anyone else?
Funding will be based on assessed support hours
the Icare tool is a MoH approved method of working out the hands on support time a person needs. It has serious flaws but it results in a number which is the assessed support hours. That number is always lower than the actual support hours required because it ignores the time between hands on support activities, and because time estimates dictated by the MoH simply don't apply to everyone assessed. It takes longer to shower, dry and dress some people than others, for instance.and will be based on core staff costs
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Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
• MOH does not fund lifestyle choice (ie where natural support would otherwise fill the need) – for example when the family refuse other government funded supports (ie
rehab/respite or MSD funded day services).Presumably if you refuse MSD funded day services (if eligible) then you don't qualify for support from MoH to fill the gap that the day service would have filled? So, if say, Margaret Spencer doesn't send her son to a day service because it isn't suitable for his particular needs or he hates it or fears it, MoH won't provide support for the time that he could've been in the day service. His needs and wishes aren't considered.
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Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
Service coordinations need to be based on ESSENTIAL NEEDS only.
we (the MoH) only fund essential needs, (hydration, feeding, administering of medication, dressing, toileting, bathing. Food shopping. Support to get to medical appointments
Why then do they ask the disabled person about their personal goals that the Ministry has no intention of supporting?
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Access: Help needed! Deciphering the…, in reply to Rosemary McDonald,
I don’t know whether it is malice, or they simply have shit for brains.
the impact is the same