Posts by Sue
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So there you go Jann Ulrich & Armstrong in the same tour waited.
I don't think Contador listens to many people, he didn't last year when Armstrong was in the team, but then i suspect having Armstrong come into your team would piss anyone off.but really one post about cycling and we go straight to the subject of various types of blood cheating & doping :/
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Can we please close the vitamin C discussion as relates to CFS
it's on my list of crackpot treatments I've tried and regretted.
and why would anyone really want to take high doses of something that give you diarrhea, becuase that's how they work out the peak of your dosages, but when you get the runs.Now here's my perspective of the medical debate
From my online CFS experience I moved away from all the CFS online discussion forums becuase the debates about the pros and cons of studies and treatments drove me nuts. Also with brain fog, you don't care about the minutiae of things, becuase it's so exhausting just reading the summary.Me i like it when a friend sends me a link, most of my friends say
"i suspect you know this already, and let me know if you want more info or help looking into it"
this leaves me up to decide what i think about it or take action and if i want to take up their offer of help.
but back to important things
PANTS!
i am sensing unknown symptom PANTS, or the checking of pants. but then i always have to check and see if i am wearing my glasses -
oops i posted the wrong thing that's a lovely link to tour torrents if anyone watches the tour de france ;)
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http://www.demonoid.com/rss/users/gpateire.xml</quote>
I now tell everyone my spelling and grammar has cfs as well ;)
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What helps me
- b12 shots twice a week
- efamol marine (but i can't afford it) make a huge difference
- toyohari a Japanese acupuncture or acupressure. Any other acupuncture or massage makes me worse as it overwhelms my body
- My Mum! I was diagnosed at 19 suspect of having CFS sine i was about 7 or 8 I'm now 38 and i live at home (which some days is enough to make me cry) and I do as much as i do (running craft2.0 having a wee jewellery business) becuase my Mum is my lifeline to the world.
- The internet, where nobody knows you are sick
- MY GP, my GP can't fix me, but when I'm having a particularly bad time she waves her magic glitter wand (yes she really has one) over me and it makes me smile and that's something.
- crafting, making things with my hands makes me smile.
- gentle swimming, ideally in the sea as it's less toxic than a swimming pool
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I can totally work out a way to make the baking happen in wellington
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@Hilary Stace
It's in my brain and i can't remember why but CFS has been around in the medical world since the 1860s so you might have an idea of an answer there
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Actually, I make magnificent lamb shanks,
I have been told that mine are the best sorry Emma.
I'm sorry everyone but you are all wrong. The very lovely Stephen Judd is the king of lamb shanks, he's a bit of a gastronomic genius all round really.
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I am really enjoying peoples thought and perspectives in this thread and the listening & sharing thank you for those like me that have it and everyone else for their thoughts and perspectives, you have no idea how much i appreciate this thread this weekend.
But Peter I have to say, but in the context of this thread I'm finding your approach a little hurtful. I'm glad for you that you have found your answers but those answers do not work for people with CFS.
CFS is real it's not imaginary and it it not a disease of the 20th century, medically findings of CFS date back to the 1860s
for people with CFS exercise is the one thing that we have to be very mindful and careful of. We stay very tuned into our bodies so we can get the most out of the exercise we are able to do when we are able to do it.
and before you say it, those who say they were cured with exercise most probaly were never given a correct diagnosis, as all studies point to those experiencing CFS as needing to be very careful around exercise.
that's all I'm going to say about exercise any I'm a little sad i even felt the need to as telling someone with CFS they need exercise is possibly the most hurtful thing you you say. Even if you have the best of intentions
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the mind is considered empty and thoughts merely phenomena that occur within the mind.
I don't think that's cognitive behaviour therapy