Public Address | Cafe | Hard News: The Oncoming Day

Andrew Flynn

Wed, 09 Dec 2020 21:39:54 +1300

For patients who need to be treated with Sofosbuvir in addition to Pharmac supplied Maviret, I recommend they access it through the Australian FixHepC site. They supply Hep C licensed generics for very affordable prices.

linger

Thu, 18 May 2017 10:07:54 +1200

Uh, whoops, we actually had a thread open for that topic.

linger

Thu, 18 May 2017 09:42:53 +1200

Social Development Minister Anne Tolley […] said in a statement the criticism outlined in the report was disappointing and avoidable.
The ministry’s chief executive would now lead an employment investigation, Mrs Tolley saidPlaying it pretty much exactly as was predicted back when Sacha first raised the prospect of an investigation.…

Sacha

Wed, 17 May 2017 22:49:02 +1200

Interesting. Who signed the reply?

nzlemming

Wed, 17 May 2017 22:41:37 +1200

Seems appropriate to leave this here:
http://www.radionz.co.nz/news/national/330943/msd-rush-caused-privacy-breach-critics

Russell Brown

Tue, 16 May 2017 13:08:40 +1200

I’m delighted that generic-buying solutions are being found. And I hope all that human potential of people suffering with Hep C can be recovered.

This is such a big thing. All those people with a chronic illness who could be working and contributing.

Hazel Heal

Tue, 16 May 2017 07:34:39 +1200

That is exactly what I spelled out for them, quoting both of those, in my letter of July 16. Got slapped down.

Sacha

Tue, 16 May 2017 00:01:55 +1200

Denying people information about their treatment options breaches NZ's Code of Health and Disability Consumers' Rights as well as personal medical practitioner ethical codes subject to sanction.

No idea how Southern DHB thinks that does not apply to them.

Lilith __

Mon, 15 May 2017 22:26:09 +1200

With 20,000 patients not having medication coverage and a list price of over $100,000 NZD it adds up to 200 billion pennies.

Pennies =/= dollars even if pennies were NZ currency, which they aren't.

I get that the patented version of the drug is expensive, but as Russell has detailed…

James Freeman

Mon, 15 May 2017 20:08:25 +1200

Hi Jason,

it's not exactly pennies we're talking about.

With 20,000 patients not having medication coverage and a list price of over $100,000 NZD it adds up to 200 billion pennies. With a penny being ~2 mm thick if we stacked them all up the stack would reach 400,000 km…

Hazel Heal

Mon, 15 May 2017 17:37:20 +1200

I first wrote to the SDHB, following an email exchange, on 14 July 2016, to point out it was 9 months since the unit was aware of the generic option. First trials had been published; asking that they at least inform if not support those who don't qualify:
"In that…

Doug Hood

Mon, 15 May 2017 14:34:16 +1200

I’ve still got the ‘Russian’ one you brought back from London

You've got me there Ian

Ian Dalziel

Mon, 15 May 2017 14:27:58 +1200

Thanks for Lost In Space Russ.
It's great that Marty is reprising some of the old classics.
I think I recognise that polka dot shirt from back then, too...
...I've still got the 'Russian' one you brought back from London.
:- )

Russell Brown

Mon, 15 May 2017 14:26:44 +1200

Thanks for Lost In Space Russ. It’s great that Marty is reprising some of the old classics. Enjoyed hearing Satin Doll again , 30+years later. He looks great!!

He sure does. And it was cool of him to give you a shout-out too :-)

Russell Brown

Mon, 15 May 2017 14:25:39 +1200

That didn’t get past the moderator, whereas the immoderate does.

I've found it doesn't pay to include links – even though they back up and supports cogent points and add knowledge to a 'discussion' .

Having spent a fair bit of the past 15 years moderating comments, I must say…

Ian Dalziel

Mon, 15 May 2017 14:15:21 +1200

That didn’t get past the moderator, whereas the immoderate does.
I've found it doesn't pay to include links – even though they back up and supports cogent points and add knowledge to a 'discussion' .
So best to allude to things or give clear search pointers – any Stuff story…

Doug Hood

Mon, 15 May 2017 14:10:50 +1200

Thanks for Lost In Space Russ. It's great that Marty is reprising some of the old classics. Enjoyed hearing Satin Doll again , 30+years later. He looks great!!

Hazel Heal

Mon, 15 May 2017 13:56:58 +1200

Brilliant, thanks Russell. And thank you re those stuff comments. I submitted one to point out what was missing in 'where to get help', or the article, ( FixhepC, Or NZHF) as you have. That didn't get past the moderator, whereas the immoderate does.
It is not penny pinching by…

Rosemary McDonald

Mon, 15 May 2017 13:47:22 +1200

The apparent staff bonuses for doing that was the surprise.

Many, many years ago at a Disability Support Services Consumer Forum I asked whether NASCs received a bonus from the Ministry if they came under budget for the year.

Went down like a cup of cold sick with the Ministry…

Russell Brown

Mon, 15 May 2017 12:56:15 +1200

The irony of all this penny pinching is that having diseases like this in the community actually cost more than treatment ever does.

There was a particular issue here in whether bending to Gilead's profiteering would have been a good thing, but it remains true that treating people with liver…

Jason Kemp

Mon, 15 May 2017 12:46:47 +1200

Thanks Rosemary – I think "demand management" was exactly what I overheard. The apparent staff bonuses for doing that was the surprise.

The relevance of all of this to health care is that that same context applies.

Rosemary McDonald

Mon, 15 May 2017 12:42:02 +1200

– the government is here to help you but if the internal policies of the agency could limit or even prevent access – that is their real policy.

I stumbled across this the other day while seeking something else...

Disability support services
The Budget includes new funding of $42.296 million…

Jason Kemp

Mon, 15 May 2017 12:19:14 +1200

The irony of all this penny pinching is that having diseases like this in the community actually cost more than treatment ever does. Even when people get the tests and find out what the the options are it is still not easy to access help even for the most savvy…

Public Address

Mon, 15 May 2017 12:19:14 +1200

Discussion from blog post.