Public Address | Cafe | Access: Your Relationship With Disability https://publicaddress.net/system/cafe/ en-us Copyright (c) 2026 Public Address Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315370#post315370 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315370#post315370 Yes, a shocking documentary piece from Warwick, and things have certainly changed. However we (our society) does not get as upset about the untimely death or the abuse or neglect of very vulnerable people with disabilities as it does about similar events happening to able bodied people. Nathan
http://www.stuff.co.nz/manawatu-standard/news/9607125/Police-investigate-teens-death-in-bath
is…

]]> Sun, 15 Jun 2014 13:43:49 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315363#post315363 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315363#post315363 One of those honoured recently posted on how the days of activism on disability issues have passed and now conversations are being had between disabled and the power brokers .Link?

Unfortunately Sacha this posting was on the DPA NZ facebook page. A page I was eventually removed from by the…

]]> Sun, 15 Jun 2014 02:44:40 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315357#post315357 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315357#post315357 Sat, 14 Jun 2014 17:08:20 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315354#post315354 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315354#post315354 One of those honoured recently posted on how the days of activism on disability issues have passed and now conversations are being had between disabled and the power brokers.

Link?

]]> Sat, 14 Jun 2014 16:26:12 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315352#post315352 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315352#post315352 That is the biggest disability-related list I have ever seen in an honours list. Good people too. The sector must be getting itself organised about using the nominations process

Hmmm. Most of those from the "sector" receiving gongs for "services to the disabled" are receiving government funding for their "work".…

]]> Sat, 14 Jun 2014 15:08:24 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315351#post315351 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315351#post315351 http://publicaddress.net/up-front/dropping-the-a-bomb/ ]]> Sat, 14 Jun 2014 15:04:58 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315348#post315348 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=315348#post315348 Sat, 14 Jun 2014 13:40:22 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314523#post314523 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314523#post314523 Tue, 03 Jun 2014 07:44:28 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314521#post314521 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314521#post314521 Here's Tariana's summary of the honours related to disability;
http://www.voxy.co.nz/health/minister-disability-issues-congratulates-2014-qb-recipients/5/192129

]]> Mon, 02 Jun 2014 22:07:48 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314517#post314517 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314517#post314517 have you seen the latest Disability Action Plan from the Office for Disability Issues? Directly responding to the CRPD obligations

YES!!!! We are on the road at the moment….being much cheaper living in our housebus than living in our home. Enjoying an evening of free wifi….so catching up with the…

]]> Mon, 02 Jun 2014 21:07:08 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314503#post314503 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314503#post314503 Erin, have you seen the latest Disability Action Plan from the Office for Disability Issues? Directly responding to the CRPD obligations.

We have little Maori/disability research but there is a link to some rare recent research in Southland in this latest May issue of the [[http://www.ihc.org.nz/hot-issues/ihc-hot-issues-may-2014/ |IHC e-news Hot…

]]> Mon, 02 Jun 2014 12:39:41 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314493#post314493 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314493#post314493 If anyone knows of any research or particular policies they think I should highlight, please let me know.

It would be interesting to have data on the impact of Funded Family Care http://www.health.govt.nz/our-work/disability-services/disability-projects-and-programmes/funded-family-care-notice-and-operational-policy
on Christchurch people with disabilities, particularly as it excludes partners/spouses from payment which can mean extreme poverty…

]]> Sun, 01 Jun 2014 23:39:11 +1200 Russell Brown https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314490#post314490 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314490#post314490 If anyone knows of any research or particular policies they think I should highlight, please let me know.

One thing that might be relevant this year is that AUT is finally focusing on disability as part of its role of conducting and analysing the World Internet Project surveys for New…

]]> Sun, 01 Jun 2014 20:50:41 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314489#post314489 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314489#post314489 Sun, 01 Jun 2014 20:38:40 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314484#post314484 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314484#post314484 Sun, 01 Jun 2014 17:46:01 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314452#post314452 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314452#post314452 Sat, 31 May 2014 17:58:54 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314449#post314449 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314449#post314449 Thanks, Erin. Off the top of my head, I'd be interested to hear:

– what the money the government invested in the main DPOs specifically for Chch-centred work has produced.

– how the proposed weakening of national building access standards relates to that and similar work in Chch.

– what…

]]> Sat, 31 May 2014 17:50:09 +1200 Erin https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314444#post314444 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314444#post314444 Sat, 31 May 2014 17:25:56 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314203#post314203 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314203#post314203 Mostly, now, you would never guess

And that is part of this too – you never forget, even though others may not notice anymore.

]]> Wed, 28 May 2014 22:07:32 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314202#post314202 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314202#post314202 reeling from the impact

it shakes worlds, yes

]]> Wed, 28 May 2014 22:05:43 +1200 Mireille https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314198#post314198 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=314198#post314198 I have bipolar disorder: it slammed like a meteor into my life, so that there is really only Before, and then the years reeling from the impact, and Now.

Mostly, now, you would never guess. Sometimes, it disables me.

]]> Wed, 28 May 2014 21:48:57 +1200 Alice Ronald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313893#post313893 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313893#post313893 C) I have a few friends with bipolar disorder, and hearing and sight impairments of varying degrees.
G) Like lesley mclean says, there's always more to learn.
H) Other – I work in the healthcare industry, though I'm not involved in patient care or policy making, so I have very…

]]> Tue, 27 May 2014 10:16:01 +1200 JacksonP https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313803#post313803 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313803#post313803 I must drop in here more often. Although this place has a habit of making me tear up a little. Thanks for sharing your stories everyone.

One wise woman.

So true. I remember the book coming out, but I was a bit young to appreciate it all back then. Will…

]]> Sun, 25 May 2014 16:59:24 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313791#post313791 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313791#post313791 Sat, 24 May 2014 23:20:53 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313790#post313790 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313790#post313790 Everything is possible with determination and support

So true.

I wish. But yes, lots is possible.

]]> Sat, 24 May 2014 22:21:56 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313788#post313788 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313788#post313788 Everything is possible with determination and support

So true.

]]> Sat, 24 May 2014 22:02:11 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313698#post313698 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313698#post313698 Thu, 22 May 2014 19:14:31 +1200 Christine Peet https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313695#post313695 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313695#post313695 Thu, 22 May 2014 18:15:15 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313609#post313609 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313609#post313609 Wed, 21 May 2014 22:41:29 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313608#post313608 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313608#post313608 Wed, 21 May 2014 22:31:39 +1200 Justin Ryan https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313607#post313607 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313607#post313607 I'm the partner of a wonderful woman with Spina Bifida. Before meeting her I had almost no exposure to those who live with disabilities, but with good humour, compassion, and a healthy dose of bloody-mindedness we've built a good life together.
We've overcome obstacles together and pushed out the boundries…

]]> Wed, 21 May 2014 22:25:36 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313597#post313597 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313597#post313597 dissertation on the Convention on the Rights of People with Disabilities

Sounds interesting. Want to tell us more, some time?

]]> Wed, 21 May 2014 21:37:35 +1200 Erin https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313596#post313596 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313596#post313596 (A) I have Cerebral Palsy
(B) My mum has Multiple Sclerosis.
(C) I have many disabled friends
(D) I have a workmate who is (also) a disabled person.
(E) My work isn't exclusively related to disability but some of it is.
(F) I am doing my law honours dissertation on…

]]> Wed, 21 May 2014 21:35:53 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313584#post313584 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313584#post313584 my mum was very close friends with Eve Rimmer. She taught me a lot about the world in general, and living with disability in particular.

Peter and I opened and closed our submission on the Family Carers Consultation with quotes from Eve's book...."No Grass between my toes."

“(Mum) took the…

]]> Wed, 21 May 2014 20:37:29 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313568#post313568 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313568#post313568 Wed, 21 May 2014 18:40:14 +1200 JacksonP https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313564#post313564 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313564#post313564 (A) I have scoliosis, and osteoarthritis in my jaw, which recently has caused chronic pain, and inability to eat foods such as an apple. But I've never really identified as having a disability. Almost certainly ADHD, but that's another story.
(C) When I was younger, my mum was very close…

]]> Wed, 21 May 2014 18:16:22 +1200 Russell Brown https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313556#post313556 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313556#post313556 Wed, 21 May 2014 17:24:45 +1200 lesley maclean https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313546#post313546 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313546#post313546 This is my first post here too.

(B) I'll answer B first. My son is on the autism spectrum. At age 12, he currently says he sees this as being a (prefereable) difference more than a disability. And as his parent I have used both 'difference' and 'disability' to describe…

]]> Wed, 21 May 2014 16:45:09 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313515#post313515 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313515#post313515 Interesting how many of us have learned a lot informally rather than formally. Is that also how we picked up our broader notions of what disability is about, do you think?

Good question. How many people actually do formal study on disability, I wonder?
Not many, I suspect.

]]> Wed, 21 May 2014 14:02:58 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313510#post313510 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313510#post313510 E Like Rosemary I choose to support a family member who needs significant care because it's the best and safest option for us. These days I'm paid under Funded Family Care but it stinks that Rosemary isn't. Similar need, similar circumstances, legalised discrimination against spouses and partners. UNFAIR!

Thank you…

]]> Wed, 21 May 2014 13:42:17 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313506#post313506 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313506#post313506 Wed, 21 May 2014 13:39:07 +1200 Rob Stowell https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313504#post313504 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313504#post313504 (A) No
(B) Yes.
(C) Yes.
(D) Yes, but not close-to-hand.
(E) Yes, but it's currently a small part of my work.
(F) Not formally, but yes informally.

]]> Wed, 21 May 2014 13:36:40 +1200 Emma Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313500#post313500 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313500#post313500 Wed, 21 May 2014 13:17:16 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313499#post313499 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313499#post313499 small actions/obstacles can make huge problems that there’s no need for.

yes

]]> Wed, 21 May 2014 13:14:22 +1200 Angela Hart https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313494#post313494 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313494#post313494 thinking of all people as variously disabled rather than creating a ghetto of ‘the disabled’ seems to me a better approach to organising a community.

nicely put Robert, that's the way I see it too.
A I have minor impairments which do not usually cause disability so, no I'm not…

]]> Wed, 21 May 2014 12:43:33 +1200 Cecelia https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313461#post313461 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313461#post313461 Wed, 21 May 2014 09:48:45 +1200 Paul Campbell https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313457#post313457 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313457#post313457 Ta. How can the rest of us help you with that?

probably not much at the moment – the issue seems to be quiet at the moment while the MoT ponders (I already wrote them), when the city holds hearings I’ll go down and make my point

In the mean…

]]> Wed, 21 May 2014 09:00:22 +1200 Robert Harvey https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313454#post313454 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313454#post313454 G: and H:
I guess people would consider me to be not disabled nor impaired, though frequently irritating. I identify with some aspects of the Aspergers spectrum. I found ‘Look Me In The Eye’ by John Elder Robison liberating, in the sense of getting permission to be who I am,…

]]> Wed, 21 May 2014 08:11:12 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313446#post313446 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313446#post313446 not formally

snap

]]> Tue, 20 May 2014 21:35:26 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313444#post313444 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313444#post313444 I'm still fighting the city

Ta. How can the rest of us help you with that?

]]> Tue, 20 May 2014 21:34:23 +1200 Paul Campbell https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313442#post313442 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313442#post313442 I dunno (H) or (A) – last year I was certainly disabled, my temporary parking permit ran out last month at about the right time, threw it away.

So I've made a temporary visit to the disabled community, but not quite left ... I'm still fighting the city who want…

]]> Tue, 20 May 2014 21:28:59 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313439#post313439 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313439#post313439 Tue, 20 May 2014 20:54:51 +1200 Ross Mason https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313438#post313438 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313438#post313438 C – Parashooter(s)
D – Amputee who is also a Parashooter Took me years to convince him that if he did the work he could shoot at the Paralympics. He might yet!!
E – Coach Parashooters

]]> Tue, 20 May 2014 20:50:38 +1200 Russell Brown https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313437#post313437 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313437#post313437 First post!

Nice one. Welcome in.

]]> Tue, 20 May 2014 20:42:41 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313436#post313436 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313436#post313436 (A) after reading about Temple Grandin today....but not really a disability.
(B) My partner is a high tetraplegic (pre ACC)'
(C)Quite a number of friends/acquaintances live with impairment/disability.
(D)When I was in paid work...yes.
(E)Hmm! as an unpaid family carer...also our family provided respite care for many disabled children over…

]]> Tue, 20 May 2014 20:26:03 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313435#post313435 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313435#post313435 Tue, 20 May 2014 20:14:40 +1200 Alister https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313434#post313434 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313434#post313434 First post!

(A) I’m severely hearing impaired since birth.
(C) I have a friend who’s also hearing impaired and another who’s Deaf.
(G) I haven’t had much exposure to the deaf/Deaf community, I was raised as a hearing person and as a result I don’t quite fit into the hearing…

]]> Tue, 20 May 2014 20:06:32 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313432#post313432 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313432#post313432 might benefit from a distinction between parenting and other family relationships

True. And sibling relationships are quite distinctive, as seen in that recent Attitude tv story about Claude and his family.

]]> Tue, 20 May 2014 20:02:07 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313429#post313429 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313429#post313429 I even won an award/contest for it from Transport for London, which I was quite chuffed about

onya.

if the APIs are freely available

Auckland Transport are opening up more of their data next week in the HackAKL event.

]]> Tue, 20 May 2014 19:58:25 +1200 Russell Brown https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313427#post313427 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313427#post313427 A: No. I think I have characteristics of attention deficit disorder, but I don’t regard it as a disability.

B: Yes. Both my sons are on the autism spectrum. I do feel that this category might benefit from a distinction between parenting and other family relationships. The former is, I…

]]> Tue, 20 May 2014 19:50:55 +1200 nic.wise https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313423#post313423 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313423#post313423 Righto then:

(G) I do not know much about disability but I’m interested.
(H) Other – please describe.

I'm an app developer (amongst other things) and where possible, I try to make sure my apps are as accessible as possible, especially to visually impaired people (if I have the term…

]]> Tue, 20 May 2014 19:30:25 +1200 Sacha https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313415#post313415 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313415#post313415 I'll get this rolling. I fit into A to E, and I guess my involvement in policy work is equivalent to F.

I've been disabled since I was young, but I never really came to grips with that side of my life until I had a disabled partner and started…

]]> Tue, 20 May 2014 18:18:22 +1200 Public Address https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313414#post313414 https://publicaddress.net/system/cafe/access-your-relationship-with-disability/?p=313414#post313414 Discussion from blog post.

]]> Tue, 20 May 2014 18:18:22 +1200