Public Address | Cafe | Access: Here's to them https://publicaddress.net/system/cafe/ en-us Copyright (c) 2026 Public Address Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=340500#post340500 https://publicaddress.net/system/cafe/access-heres-to-them/?p=340500#post340500 here is what's possible

https://www.youtube.com/watch?v=5NFsA_L3VDY

]]> Sat, 16 May 2015 22:17:50 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=339968#post339968 https://publicaddress.net/system/cafe/access-heres-to-them/?p=339968#post339968 Wed, 06 May 2015 21:34:12 +1200 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=339942#post339942 https://publicaddress.net/system/cafe/access-heres-to-them/?p=339942#post339942 Supports the theory that our tendency to overload is connected to not being able to filter out extraneous details

I could have told them that :-)

]]> Wed, 06 May 2015 18:57:27 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=339941#post339941 https://publicaddress.net/system/cafe/access-heres-to-them/?p=339941#post339941 how people with autism interpret complex movement. Supports the theory that our tendency to overload is connected to not being able to filter out extraneous details. But we can also be really good at joining the dots, as it were. ]]> Wed, 06 May 2015 18:50:15 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-heres-to-them/?p=338379#post338379 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338379#post338379 "It grieves me when I see parents still facing some of the same bullshit we did, the more so given that most of them don't even have access to the same level of support that we did 20 years ago."

Well said, and bugger me if they didn't go and…

]]> Mon, 13 Apr 2015 19:10:24 +1200 Joe Wylie https://publicaddress.net/system/cafe/access-heres-to-them/?p=338336#post338336 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338336#post338336 Because I was experiencing a similar problem at the time, I once took the trouble to delve through a lengthy email exchange that had been posted online by a US teenager seeking redress from Apple over what he insisted was a faulty product.

The guy started out by explaining that…

]]> Mon, 13 Apr 2015 14:13:49 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=338304#post338304 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338304#post338304 Mon, 13 Apr 2015 13:10:00 +1200 Joe Wylie https://publicaddress.net/system/cafe/access-heres-to-them/?p=338247#post338247 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338247#post338247 There is nothing special about what disabled students need to support their study and involvement in school life.

It’s a nice statement of intent, and one I’ve encountered many times over the years. Again IMHE it comes down to how it’s implemented. Where I’ve seen it go wrong is when…

]]> Mon, 13 Apr 2015 09:33:58 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=338241#post338241 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338241#post338241 Mon, 13 Apr 2015 09:06:23 +1200 Joe Wylie https://publicaddress.net/system/cafe/access-heres-to-them/?p=338236#post338236 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338236#post338236 Mon, 13 Apr 2015 08:55:43 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=338235#post338235 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338235#post338235 Mon, 13 Apr 2015 08:51:53 +1200 Joe Wylie https://publicaddress.net/system/cafe/access-heres-to-them/?p=338223#post338223 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338223#post338223 And can we please ban the word ‘special’?

Back in the day I was grateful for the “special class” teacher’s policy of letting the “specials” out 15 minutes early so they wouldn’t be rolled by the regular kids for their bus fare to feed the spacies machines. Of course that…

]]> Sun, 12 Apr 2015 22:25:13 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=338221#post338221 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338221#post338221 Sun, 12 Apr 2015 19:36:27 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=338213#post338213 https://publicaddress.net/system/cafe/access-heres-to-them/?p=338213#post338213 Some more stories from parents of disabled children. And can we please ban the word 'special'? ]]> Sun, 12 Apr 2015 16:41:43 +1200 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337811#post337811 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337811#post337811 This is brilliant: a non-verbal 12 year-old autistic kid speaks (types) for himself.

Turns out he found ABA really boring.

]]> Tue, 07 Apr 2015 15:31:41 +1200 BenWilson https://publicaddress.net/system/cafe/access-heres-to-them/?p=337804#post337804 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337804#post337804 Much as I enjoy his company on the town, it was nice to know he was out with his peers.

That is very nice to know. Many steps to get to that point, but there it is. Who cares if it came 10 years later than it might for the…

]]> Tue, 07 Apr 2015 12:56:13 +1200 BenWilson https://publicaddress.net/system/cafe/access-heres-to-them/?p=337803#post337803 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337803#post337803 You don’t know when it’s done or even what being done will actually look like.

No, all benchmarks against normality are really just for interest's sake. We've learned to measure progress only against where Marcus was, rather than where everyone else his age is. A lot of progress on things…

]]> Tue, 07 Apr 2015 12:51:46 +1200 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337796#post337796 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337796#post337796 Marcus’ disabilities are not exactly the same, but the fact of expecting for him to be totally reliant upon us far longer than other children usually are was an excellent heads-up for our own emotional preparation.

This is actually the key thing for me. You don't know when it's done…

]]> Tue, 07 Apr 2015 10:58:57 +1200 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337795#post337795 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337795#post337795 Learning we can't 'fix' our autistic daughter. ]]> Tue, 07 Apr 2015 10:32:56 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=337791#post337791 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337791#post337791 Tue, 07 Apr 2015 08:11:17 +1200 BenWilson https://publicaddress.net/system/cafe/access-heres-to-them/?p=337780#post337780 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337780#post337780 . And to you all . I may not say much here, but I read all the Access threads, and very much appreciate them. I learned a lot from time spent with Leo, both about his particular condition, but also how a functional family deals with a situation… ]]> Mon, 06 Apr 2015 17:29:50 +1200 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337773#post337773 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337773#post337773 According to my psych, I might have PDD-NOS as per the DSM-4, as she thought I wasn’t fully Aspie.

The advantage of the new approach in the DSM 5 seems to me that it can get away from somewhat arbitrary boundaries in diagnosis. It’s a bit like you’re being told…

]]> Mon, 06 Apr 2015 14:33:01 +1200 Kumara Republic https://publicaddress.net/system/cafe/access-heres-to-them/?p=337757#post337757 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337757#post337757 Sun, 05 Apr 2015 15:16:49 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=337747#post337747 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337747#post337747 Sun, 05 Apr 2015 07:44:14 +1200 Angela Hart https://publicaddress.net/system/cafe/access-heres-to-them/?p=337742#post337742 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337742#post337742 I want to see in my lifetime a support system that assumes people aren't trying to defraud it.

me too

]]> Sat, 04 Apr 2015 23:43:54 +1300 Kumara Republic https://publicaddress.net/system/cafe/access-heres-to-them/?p=337738#post337738 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337738#post337738 A population who gets us and respects us might take longer.

Especially when spree shooters like Adam Lanza, Elliot Rodger and others keep getting mistakenly labelled as autistic.

In Japan, autistics who fall through the cracks often join the ranks of the 'hikikomori'. I probably would have been one of…

]]> Sat, 04 Apr 2015 21:08:40 +1300 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337735#post337735 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337735#post337735 That saddens me. Though there are ways through this for you and others, we waste so much effort for no reason.

I want to see in my lifetime a support system that assumes people aren't trying to defraud it. A population who gets us and respects us might take longer.

]]> Sat, 04 Apr 2015 20:18:15 +1300 Kumara Republic https://publicaddress.net/system/cafe/access-heres-to-them/?p=337734#post337734 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337734#post337734 Well done for sticking it out, and especially identifying the problems early.

It's taken 30 years for my folks to realise what kind of 'different' I am, and now they're full of regrets about what they've put me through. The only reason they can't fix it now is because they're…

]]> Sat, 04 Apr 2015 19:28:43 +1300 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337731#post337731 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337731#post337731 Sat, 04 Apr 2015 14:46:01 +1300 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=337730#post337730 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337730#post337730 Sat, 04 Apr 2015 14:04:20 +1300 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337729#post337729 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337729#post337729 There is no accountability

Because that would require valuing disabled children and their families. Or to have properly-resourced, competent advocacy networks.

]]> Sat, 04 Apr 2015 13:22:07 +1300 giovanni tiso https://publicaddress.net/system/cafe/access-heres-to-them/?p=337728#post337728 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337728#post337728 And all the people I know of in special needs education here are also outraged – there isn't a culture in that sector of the "naughty chair".

The culture in special needs education, from what I see from their leadership, is weak. The culture in most schools is weaker still.…

]]> Sat, 04 Apr 2015 13:00:31 +1300 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337727#post337727 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337727#post337727 Just for a change-up, Jim has expanded into video game reviews. This is his first one using the Elgato HD 60 capture device, which he bought from his Bridgeway earnings.

https://youtu.be/LbzcmJKEf6U

]]> Sat, 04 Apr 2015 12:45:28 +1300 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337719#post337719 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337719#post337719 Fri, 03 Apr 2015 23:16:42 +1300 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337718#post337718 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337718#post337718 Fri, 03 Apr 2015 23:14:04 +1300 TracyMac https://publicaddress.net/system/cafe/access-heres-to-them/?p=337715#post337715 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337715#post337715 I totally agree that confining a child except in an urgent case of keeping the kids safe (for a very limited time until the guardians can fetch him/her) is appalling. And that outrage is the appropriate response.

And all the people I know of in special needs education here are…

]]> Fri, 03 Apr 2015 22:40:00 +1300 Sacha https://publicaddress.net/system/cafe/access-heres-to-them/?p=337713#post337713 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337713#post337713 this is most likely a systemic failure of ACT special needs services (in great part) due to federal funding cuts rather than a sadistic teacher or a deliberately negligent institution or programme.

People will feel outraged at the results whether or not we take the causes into consideration. Simply not…

]]> Fri, 03 Apr 2015 18:59:17 +1300 giovanni tiso https://publicaddress.net/system/cafe/access-heres-to-them/?p=337712#post337712 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337712#post337712 So while it's appalling, you have frontline staff making decisions that seem best for the majority of students in the class, while not having facilities to properly care for the kid who is having a bad and disruptive day, or who simply can't cope with the environnent on good days.… ]]> Fri, 03 Apr 2015 18:55:21 +1300 Rob Stowell https://publicaddress.net/system/cafe/access-heres-to-them/?p=337708#post337708 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337708#post337708 Bravo! Lovely words.
Our eperience has been a bit different. Oscar has Down syndrome; the word autism didn't crop up til he was almost 5.
The double diagnosis has meant we've not quite fitted into either the autism or Down Syndrome support networks -though both in their way have been…

]]> Fri, 03 Apr 2015 16:18:23 +1300 TracyMac https://publicaddress.net/system/cafe/access-heres-to-them/?p=337705#post337705 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337705#post337705 I would like to just say that as someone whose partner worked in special needs education until the end of last year – when the programme funding was cut – this report does not tell anywhere near the full story.

Funding has been cut by 40%, even though increasing numbers…

]]> Fri, 03 Apr 2015 15:57:44 +1300 Alfie https://publicaddress.net/system/cafe/access-heres-to-them/?p=337698#post337698 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337698#post337698 Fri, 03 Apr 2015 12:50:43 +1300 Rebecca Williams https://publicaddress.net/system/cafe/access-heres-to-them/?p=337694#post337694 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337694#post337694 Thu, 02 Apr 2015 22:25:34 +1300 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337692#post337692 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337692#post337692 This part ...

Let newly diagnosed families know that they are not alone, that yes autism is a lot to cope with but it’s not the end of the Earth, and that the child they loved yesterday is the same child they love today, just with a new word in…

]]> Thu, 02 Apr 2015 21:04:18 +1300 Martin https://publicaddress.net/system/cafe/access-heres-to-them/?p=337691#post337691 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337691#post337691 Thu, 02 Apr 2015 21:01:22 +1300 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=337690#post337690 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337690#post337690 Thu, 02 Apr 2015 20:56:45 +1300 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=337689#post337689 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337689#post337689 Autism and Oughtisms blog for WAAD mentioning the recent diagnosis of second autistic child seems appropriate ]]> Thu, 02 Apr 2015 20:36:10 +1300 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337688#post337688 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337688#post337688 These days I mainly encourage people to join in some of those well moderated Facebook groups – being wary that it is a public noticeboard – such as Autism in NZ.

That's what I was talking about in the part about being grieved by the bullshit some parents still have…

]]> Thu, 02 Apr 2015 19:50:58 +1300 Russell Brown https://publicaddress.net/system/cafe/access-heres-to-them/?p=337687#post337687 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337687#post337687 minor typo- the post starts "When Fiona and became parents"

Oops. Thanks.

]]> Thu, 02 Apr 2015 19:47:58 +1300 Hilary Stace https://publicaddress.net/system/cafe/access-heres-to-them/?p=337686#post337686 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337686#post337686 Thu, 02 Apr 2015 17:58:24 +1300 David Hood https://publicaddress.net/system/cafe/access-heres-to-them/?p=337683#post337683 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337683#post337683 Thu, 02 Apr 2015 16:45:35 +1300 Rob Hosking https://publicaddress.net/system/cafe/access-heres-to-them/?p=337681#post337681 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337681#post337681 Great post. Does anyone else find it difficult, as parents of autistic kids, not to divide the world into 'those who get it' and 'those who don't?'

Ok, maybe not divide as such – because that does become an automatic necessity, I think – but divide people too excessively this…

]]> Thu, 02 Apr 2015 16:00:13 +1300 asnz https://publicaddress.net/system/cafe/access-heres-to-them/?p=337678#post337678 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337678#post337678 Thu, 02 Apr 2015 14:43:18 +1300 Paul Williams https://publicaddress.net/system/cafe/access-heres-to-them/?p=337677#post337677 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337677#post337677 Thu, 02 Apr 2015 14:38:45 +1300 giovanni tiso https://publicaddress.net/system/cafe/access-heres-to-them/?p=337675#post337675 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337675#post337675 Thu, 02 Apr 2015 14:03:57 +1300 Gibson Paul https://publicaddress.net/system/cafe/access-heres-to-them/?p=337672#post337672 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337672#post337672 Thu, 02 Apr 2015 13:17:31 +1300 Dave Dobbyn https://publicaddress.net/system/cafe/access-heres-to-them/?p=337670#post337670 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337670#post337670 Thu, 02 Apr 2015 12:51:36 +1300 Public Address https://publicaddress.net/system/cafe/access-heres-to-them/?p=337669#post337669 https://publicaddress.net/system/cafe/access-heres-to-them/?p=337669#post337669 Discussion from blog post.

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