<?xml version="1.0" encoding="UTF-8"?>




<rss xmlns:atom="http://www.w3.org/2005/Atom" version="2.0">
	<channel>
		<title>Public Address | Cafe | Access: Help needed!  Deciphering the Plan for High Cost Community Care</title>
		<link>https://publicaddress.net/system/cafe/</link>
		<atom:link rel="self" href="https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/rss/" type="application/rss+xml"/>
		
		<description><![CDATA[A talking shop where we put the questions and our community illuminates the issues.]]></description>
			<language>en-us</language>
			<copyright>Copyright (c) 2026 Public Address</copyright>
			

		
			<item>
				<title>mark taslov</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370517#post370517</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370517#post370517</guid>
				<description><![CDATA[
						I keep coming back to these threads and I can never quite find the words to express the disgust I feel about this discriminatory dehumanisation. Where is the groundswell of support? where is the full scale media coverage beyond damage control? Where is the compassion? What happened to our country?…
					]]></description>
				<pubDate>Fri, 10 Feb 2017 18:02:24 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370516#post370516</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370516#post370516</guid>
				<description><![CDATA[
						Another recent case I missed of a disabled person <a href="http://www.stuff.co.nz/national/health/89143676/paralysed-masterton-woman-disgusted-and-appalled-at-housing-treatment" target="_blank" rel="noopener noreferrer">being punished</a> by the system for her region's lack of accessible housing.
					]]></description>
				<pubDate>Fri, 10 Feb 2017 17:47:55 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370416#post370416</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370416#post370416</guid>
				<description><![CDATA[
						What might have been? But look at what is being perpetrated with our money, your taxes and mine, what an abuse!
					]]></description>
				<pubDate>Wed, 08 Feb 2017 22:50:12 +1300</pubDate>
			</item>
		
			<item>
				<title>Hilary Stace</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370412#post370412</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370412#post370412</guid>
				<description><![CDATA[
						Just imagine the purpose built house and 24/7 care in the community he could have had for this amount of money.
					]]></description>
				<pubDate>Wed, 08 Feb 2017 22:19:48 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370397#post370397</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370397#post370397</guid>
				<description><![CDATA[
						Thanks Sacha, I suspected as much. Now the clinician is denying that he is effectively in isolation. There is no denying that the man is imprisoned without trial and his "treatment" has made his mental health much worse.
					]]></description>
				<pubDate>Wed, 08 Feb 2017 16:43:53 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370390#post370390</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370390#post370390</guid>
				<description><![CDATA[
						<p><q>Where is Ashley Peacock now?</q></p><p>Still <a href="http://www.stuff.co.nz/national/health/89182509/wellingtons-new-forensic-facility-and-a-high-cost-patient-revealed-to-select-committee" target="_blank" rel="noopener noreferrer">expensively stuck</a> in that dire prison, according to the select committee's annual review of that DHB.</p>
					]]></description>
				<pubDate>Wed, 08 Feb 2017 14:55:56 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370364#post370364</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370364#post370364</guid>
				<description><![CDATA[
						<p><q>The petition would call for an over-arching agency to be set up</q></p><p>That has been a rallying call for many years. Pros and cons. </p><p>Main benefit is one place to go that understands the experience of disability. Ministry of 'Health' still seems to believe it's about being sick longer before…</p>
					]]></description>
				<pubDate>Tue, 07 Feb 2017 20:33:22 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370362#post370362</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370362#post370362</guid>
				<description><![CDATA[
						<p>__Ms Butcher said the lack of follow-up from agencies was a problem.</p><p>The petition would call for an over-arching agency to be set up "that oversees, reviews and controls all government sector services and agencies that currently fail us".</p><p>"While there is a lot of support, there's a lack of…</p>
					]]></description>
				<pubDate>Tue, 07 Feb 2017 19:24:04 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370358#post370358</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370358#post370358</guid>
				<description><![CDATA[
						Ruby Knox's DHB is commissioning an <a href="http://www.radionz.co.nz/news/national/323988/autistic-girl&#039;s-murder-sparks-external-review" target="_blank" rel="noopener noreferrer">external review</a> of its 'high and complex' support services (by Rosemary Marks, the audio track said).
					]]></description>
				<pubDate>Tue, 07 Feb 2017 18:06:50 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370320#post370320</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370320#post370320</guid>
				<description><![CDATA[
						<p><q>I can state categorically that for Peter the Ministry of Health was the worst thing that could have happened in terms of security of home based care.</p><p>They cocked up big time….and the bastards will never admit it.</q></p><p>and to state the obvious- problems don't get fixed until those with…</p>
					]]></description>
				<pubDate>Tue, 07 Feb 2017 10:32:58 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370312#post370312</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370312#post370312</guid>
				<description><![CDATA[
						<p><q>I wonder if anybody compared service responsiveness from the old Department of Social Welfare to the Misery after Richardson and co made the switcheroo?</q></p><p>Very good question...which I'll try to respond to in a more coherent fashion than my last comment.</p><p>Briefly...Peter broke neck in 1970.  Spent until about 1985…</p>
					]]></description>
				<pubDate>Mon, 06 Feb 2017 23:40:13 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370310#post370310</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370310#post370310</guid>
				<description><![CDATA[
						I wonder if anybody compared service responsiveness from the old Department of Social Welfare to the Misery after Richardson and co made the switcheroo?
					]]></description>
				<pubDate>Mon, 06 Feb 2017 21:58:24 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370309#post370309</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370309#post370309</guid>
				<description><![CDATA[
						<p><q><br />How our 1990s funder/provider ‘market’ approach does not work for disability support services is touched on in this story about Donella Knox’s murder of her autistic daughter Ruby:</p><p>    Butcher said that even though Knox was allocated respite care she couldn’t take it as there were no qualified carers in her…</q></p>
					]]></description>
				<pubDate>Mon, 06 Feb 2017 19:32:44 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370307#post370307</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370307#post370307</guid>
				<description><![CDATA[
						The lack of movement, the difficulty in obtaining timely, practical, knowledgeable help just doesn't seem to be addressed. Where is Ashley Peacock now?
					]]></description>
				<pubDate>Mon, 06 Feb 2017 16:37:33 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370303#post370303</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370303#post370303</guid>
				<description><![CDATA[
						Simon Collins touches on many of the <a href="http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&amp;objectid=11795170" target="_blank" rel="noopener noreferrer">systemic problems</a> around autism support services.
					]]></description>
				<pubDate>Mon, 06 Feb 2017 12:03:15 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370301#post370301</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370301#post370301</guid>
				<description><![CDATA[
						Might have been in wrong location for their needs?
					]]></description>
				<pubDate>Mon, 06 Feb 2017 11:11:54 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370300#post370300</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370300#post370300</guid>
				<description><![CDATA[
						<p>another in the long, long list of situations where a government agency has failed to do its job until media picked up the story. It seems almost the norm now.</p><p>I can't help but wonder what was so wrong with the house that the several families who didn't need wheelchair…</p>
					]]></description>
				<pubDate>Mon, 06 Feb 2017 11:03:35 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370278#post370278</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370278#post370278</guid>
				<description><![CDATA[
						Incompetent agencies <a href="http://www.stuff.co.nz/national/89063547/tetraplegic-mum-overwhelmed-by-kindness-as-she-finally-gets-a-home" target="_blank" rel="noopener noreferrer">finally act</a> after publicity, but Housing NZ still manage to offer a rare accessible house to non-disabled people ahead of a wheelchair user who had been living in a car with her family for 2 months.
					]]></description>
				<pubDate>Sun, 05 Feb 2017 11:33:50 +1300</pubDate>
			</item>
		
			<item>
				<title>walrus</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370276#post370276</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370276#post370276</guid>
				<description><![CDATA[
						<p><q> They said that 252 days a year of respite care was made available to her – a higher allocation than anyone else on their books. She could also choose the carer. </q></p><p>Betcha those 252 days of "respite care" were actually Carer Support--ie not respite, not days, and not with paid…</p>
					]]></description>
				<pubDate>Sat, 04 Feb 2017 23:57:14 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370269#post370269</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370269#post370269</guid>
				<description><![CDATA[
						<p>How our 1990s funder/provider 'market' approach does not work for disability support services is touched on in <a href="http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&amp;objectid=11794766" target="_blank" rel="noopener noreferrer">this story</a> about Donella Knox's murder of her autistic daughter Ruby:</p><p><q>Butcher said that even though Knox was allocated respite care she couldn't take it as there were no qualified carers in her region.</q>…</p>
					]]></description>
				<pubDate>Sat, 04 Feb 2017 18:49:46 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370208#post370208</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370208#post370208</guid>
				<description><![CDATA[
						<p><q>What they didn’t get, and still don’t, is that the ‘alternative’ of residential care is no alternative at all since not many would choose residential care after being cared for in their own home.</p><p></q><br />It's more than that. It isn't a valid choice for some people because the residential care…</p>
					]]></description>
				<pubDate>Thu, 02 Feb 2017 14:48:57 +1300</pubDate>
			</item>
		
			<item>
				<title>Hilary Stace</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370188#post370188</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370188#post370188</guid>
				<description><![CDATA[
						Looking forward to talking to him. That's my electorate.
					]]></description>
				<pubDate>Wed, 01 Feb 2017 14:19:43 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370169#post370169</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370169#post370169</guid>
				<description><![CDATA[
						<p>The quick-witted will have remembered that the Guideline (the focus of this post) states quite clearly that....</p><p><q>In the main, the overriding principal should be that if a person chooses to remain in their own home then the support package will be based on their assessed need and the funding…</q></p>
					]]></description>
				<pubDate>Wed, 01 Feb 2017 10:20:58 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370168#post370168</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370168#post370168</guid>
				<description><![CDATA[
						<p>Greg O'Connor,  fearless defender of the honour of the NZ Police, was on <a href="http://www.radionz.co.nz/news/political/323522/greg-o&#039;connor-targets-dunne-seat" target="_blank" rel="noopener noreferrer">Natrad</a> this morning discussing his political aspirations with the Labour Party.  Peter was listening and told me O'Connor told Espiner that he had an interest in disability. "Go lookitup", Peter said.</p><p><a href="https://nz.linkedin.com/in/greg-o-connor-91bb3119" target="_blank" rel="noopener noreferrer">According to Linkedin</a> O'Connor is on…</p>
					]]></description>
				<pubDate>Wed, 01 Feb 2017 09:18:29 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370135#post370135</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370135#post370135</guid>
				<description><![CDATA[
						<p><q>That sounds awfully familiar already.</q></p><p>It's the here and now.</p><p>This is hanging over our heads,  all day and every day.  Just thinking about what Peter's future could be if/when I wear out produces symptoms of what I now realise is <a href="https://www.adaa.org/understanding-anxiety/panic-disorder-agoraphobia/symptoms" target="_blank" rel="noopener noreferrer">a panic attack.</a></p><p>I am supposed to be writing…</p>
					]]></description>
				<pubDate>Sat, 28 Jan 2017 16:56:27 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370133#post370133</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370133#post370133</guid>
				<description><![CDATA[
						<q>CCGs [the UK equivalent of NZ's NASC agencies] were setting limits on how much they were prepared to pay for supporting people in their homes compared to an “alternative option”, which is usually a care home. They were willing to pay between 10% and 40% above the care home option,…</q>
					]]></description>
				<pubDate>Sat, 28 Jan 2017 15:38:06 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370120#post370120</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=370120#post370120</guid>
				<description><![CDATA[
						<p><a href="https://www.theguardian.com/commentisfree/2017/jan/25/disabled-people-disabilities-health-care-homes" target="_blank" rel="noopener noreferrer">Disabled people are to be ‘warehoused’. We should be livid</a></p><p><strong>We should.</strong></p>
					]]></description>
				<pubDate>Fri, 27 Jan 2017 23:29:13 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369558#post369558</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369558#post369558</guid>
				<description><![CDATA[
						<p><q>Were mental institutions really abolished years ago?</q></p><p>You made  me have to go and lookitup....</p><p>yes,  the big institutions were 'abolished'....but the need for some containment/secure facilities was recognised and these became known as "forensic units'. They love to think that by changing the terminology they change the thinking don't…</p>
					]]></description>
				<pubDate>Sat, 14 Jan 2017 19:21:47 +1300</pubDate>
			</item>
		
			<item>
				<title>Kumara Republic</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369557#post369557</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369557#post369557</guid>
				<description><![CDATA[
						<p><q>And also, Lawyer Tony Ellis gets a mention in this Stuff article written by the more than competent John Weeks….who also penned this update on the case that Ellis took to the courts last year.</q></p><p>Were mental institutions really abolished years ago?</p>
					]]></description>
				<pubDate>Sat, 14 Jan 2017 17:05:34 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369556#post369556</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369556#post369556</guid>
				<description><![CDATA[
						<q>There has been no introduction to a potential Contingency Plan Service Provider…as was our very definitely stated goal for this assessment, just a statement from the NASC manager that he would provide us with a list of Providers so, I suppose, we can sort our own shit out should I…</q>
					]]></description>
				<pubDate>Sat, 14 Jan 2017 13:31:11 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369555#post369555</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369555#post369555</guid>
				<description><![CDATA[
						<p>Well, here we go again.</p><p><a href="http://www.radionz.co.nz/news/national/322335/autistic-teen-put-in-police-cell-as-agencies-refuse-care" target="_blank" rel="noopener noreferrer">Autistic teen put in police cell as agencies refuse care</a></p><p><q>An autistic 14-year-old boy has had to spend a night in police cells this week and has been in and out of court with no agencies willing to take him into their care.</p><p>He will…</q></p>
					]]></description>
				<pubDate>Sat, 14 Jan 2017 12:53:06 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369206#post369206</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=369206#post369206</guid>
				<description><![CDATA[
						<p>Almost as if on cue, and after a very long and extremely intensive <a href="http://www.health.govt.nz/your-health/services-and-support/disability-services/getting-support-disability/needs-assessment-and-service-coordination-services" target="_blank" rel="noopener noreferrer">Needs Assessment</a> which included the assessment being peer reviewed by two other NASCs, our NASC has managed to manage Peter's allocated supports into negative territory.  </p><p>What was an allocation  56 hours of IF (which we've never used…</p>
					]]></description>
				<pubDate>Fri, 16 Dec 2016 18:05:16 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368856#post368856</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368856#post368856</guid>
				<description><![CDATA[
						<p>Taking my own advice (concerning, no?) I googled "high and very high support needs MOH DSS" and set the search tools to "NZ" and "past year", et voila!  I arrive right back to <strong>this</strong> post on PA.</p><p>Page one,  with the other hits being mainly from the Miserly, or IHC…</p>
					]]></description>
				<pubDate>Fri, 09 Dec 2016 00:23:49 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368853#post368853</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368853#post368853</guid>
				<description><![CDATA[
						<p>Ah,  but,  if one googles 'nzdoctor disability'  the magic of the interweb will allow a small(but very useful) number of articles one can read.  But choose wisely...;-)</p><p>I am a slow learner...</p>
					]]></description>
				<pubDate>Thu, 08 Dec 2016 20:55:37 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368852#post368852</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368852#post368852</guid>
				<description><![CDATA[
						<p><q>Which in practice makes it a <em>schistem</em>, i.e. brittle and flaky, and not too far removed from something full of sh**.</q></p><p>Yep,  you get it.</p><p>And we're also looking at a <em>schism</em>, i.e. a division between the official narrative and reality.</p><p>A gap that is unbridgeable, which leaves a whole…</p>
					]]></description>
				<pubDate>Thu, 08 Dec 2016 20:52:17 +1300</pubDate>
			</item>
		
			<item>
				<title>Hilary Stace</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368717#post368717</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368717#post368717</guid>
				<description><![CDATA[
						I can't get in via that link but I often see printed copies of NZ Doctor and it has some good articles and writers.  I have also caught up with the TV pieces on Funded Family Care last weekend. Mike Wesley Smith's piece on the Nation last Saturday was excellent…
					]]></description>
				<pubDate>Thu, 01 Dec 2016 16:41:13 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368712#post368712</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368712#post368712</guid>
				<description><![CDATA[
						<p><q>maybe the link won't work</q></p><p>They have a smart firewall that usually lets you visit from a <a href="https://t.co/qvol1De36s" target="_blank" rel="noopener noreferrer">tweeted link</a> once. See if that one works.</p>
					]]></description>
				<pubDate>Thu, 01 Dec 2016 13:43:21 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368711#post368711</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368711#post368711</guid>
				<description><![CDATA[
						<p><q>Dr Cullen wants to see a drastic overhaul of services to make them more straightforward and bring them un­der one state agency.</p><p></q></p><p>I think the one agency thing is long overdue, but it cannot be the MoH and it cannot employ people from the MoH because of their generally entrenched…</p>
					]]></description>
				<pubDate>Thu, 01 Dec 2016 12:57:48 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368709#post368709</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368709#post368709</guid>
				<description><![CDATA[
						<p><q>For people with very high and complex needs, the dis­ability sector and Ministry of Health-led new direction of “choice and control” is not going to work, Dr Cullen says.</p><p>“This choice thing is a nonsense, and it is to the detri­ment of our most vulnerable.</q></p><p>Hear hear, but will the…</p>
					]]></description>
				<pubDate>Thu, 01 Dec 2016 12:41:35 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368708#post368708</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368708#post368708</guid>
				<description><![CDATA[
						<p><q>Some providers are turning high-needs people away rather than bear all the risks and re­sponsibilities, Dr Bennie says.</q></p><p>It's great to see professionals recognising the problems which the Ministry responsible continues to ignore or sideline.</p>
					]]></description>
				<pubDate>Thu, 01 Dec 2016 12:38:26 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368689#post368689</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368689#post368689</guid>
				<description><![CDATA[
						<p>More from NZ Doctor....<a href="http://www.nzdoctor.co.nz/news/2016/november-2016/29/disabled-by-a-system-straw-men-and-short-straws.aspx" target="_blank" rel="noopener noreferrer">http://www.nzdoctor.co.nz/news/2016/november-2016/29/disabled-by-a-system-straw-men-and-short-straws.aspx</a></p><p>(okay,  maybe the link won't work because of login requirements...but if a technomoron like me can get in...;-)  </p><p>This is a <strong>very</strong> good piece.  </p><p><q>Wellington GP Anne-Marie Cullen says talking to par­ents of disabled children and young people leaves her “shocked at the lack of supports”.…</q></p>
					]]></description>
				<pubDate>Thu, 01 Dec 2016 01:39:59 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368688#post368688</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368688#post368688</guid>
				<description><![CDATA[
						<p>Service Providers struggle to make a profit out of disabled clients with high and complex needs...</p><p><a href="http://www.nzdoctor.co.nz/news/2016/november-2016/29/disability-services-want-funds-to-match-complexity-of-care.aspx" target="_blank" rel="noopener noreferrer">http://www.nzdoctor.co.nz/news/2016/november-2016/29/disability-services-want-funds-to-match-complexity-of-care.aspx</a></p><p><q>Contract prices do not reflect the costs of meeting the Govern­ment’s service requirements, Dr Bennie says. This is most acutely felt for people with the highest and most complex needs, and he worries…</q></p>
					]]></description>
				<pubDate>Thu, 01 Dec 2016 01:12:59 +1300</pubDate>
			</item>
		
			<item>
				<title>linger</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368626#post368626</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368626#post368626</guid>
				<description><![CDATA[
						<q>The [MoH] [...] ‘system’ [...] has little if any flexibility</q>Which in practice makes it a <em>schistem,</em> i.e. brittle and flaky, and not too far removed from something full of sh**.
					]]></description>
				<pubDate>Mon, 28 Nov 2016 21:21:38 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368623#post368623</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368623#post368623</guid>
				<description><![CDATA[
						<p><q>Re: core staff costs – my best guess is that the intended calculation is, roughly, (number of assessed support hours) x (number of people required simultaneously), possibly also with some fudge factor for (specialised-skill-dependent payscale required). Which, at least dimensionally, makes some sort of sense.</q></p><p>Unless one needs two staff…</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 20:49:01 +1300</pubDate>
			</item>
		
			<item>
				<title>linger</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368620#post368620</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368620#post368620</guid>
				<description><![CDATA[
						Re: <em>core staff costs</em> &mdash; my best guess is that the intended calculation is, roughly, (number of assessed support hours) x (number of people required simultaneously), possibly also with some fudge factor for (specialised-skill-dependent payscale required). Which, at least dimensionally, makes some sort of sense.
					]]></description>
				<pubDate>Mon, 28 Nov 2016 19:56:34 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368617#post368617</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368617#post368617</guid>
				<description><![CDATA[
						<q>NASC must use the ICARe process to determine the need for direct physical support (hands on support needs) at all times ensuring that natural supports (not considering lifestyle choices such as full time work) are included in the support plan. Funding will be based on assessed support hours and will…</q>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 17:38:04 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368616#post368616</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368616#post368616</guid>
				<description><![CDATA[
						<p><q>• MOH does not fund lifestyle choice (ie where natural support would otherwise fill the need) – for example when the family refuse other government funded supports (ie<br />rehab/respite or MSD funded day services).</p><p></q><br />Presumably if you refuse MSD funded day services (if eligible) then you don't qualify for support…</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 17:25:58 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368615#post368615</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368615#post368615</guid>
				<description><![CDATA[
						<p><q>Service coordinations need to be based on ESSENTIAL NEEDS only.</p><p></q><br />we (the MoH) only fund essential needs, (hydration, feeding, administering of medication, dressing, toileting, bathing. Food shopping. Support to get to medical appointments</p><p>Why then do they ask the disabled person about their personal goals that the Ministry has no…</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 17:18:36 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368607#post368607</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368607#post368607</guid>
				<description><![CDATA[
						<p>For a bit of historical context....<a href="https://www.beehive.govt.nz/speech/address-ihc-southland-parents-conference" target="_blank" rel="noopener noreferrer">this is a speech by Ruth Dyson from 2001.</a></p><p><q>I particularly liked the description in the conference programme of the NASC workshop – “unlocking the mysteries of the Needs Assessment”. Perhaps when you’ve done that, you could give me the key as well!</p><p>I must…</q></p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 13:06:25 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368603#post368603</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368603#post368603</guid>
				<description><![CDATA[
						<q> I’d forgotten how obnoxious Tony Ryall was </q>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 11:50:42 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368602#post368602</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368602#post368602</guid>
				<description><![CDATA[
						<p>I'm really keen to get others' interpretation of these two passages....(I am incapable of seeing them other than through the lens of suspicion.)</p><p><br /><q></p><p>Service coordinations need to be based on ESSENTIAL NEEDS only.</p><p>• MOH does not fund lifestyle choice (ie where natural support would otherwise fill the need) -…</q></p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 11:48:56 +1300</pubDate>
			</item>
		
			<item>
				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368600#post368600</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368600#post368600</guid>
				<description><![CDATA[
						<p><q>the need to manage within fiscal constraints prevails</q></p><p>Interesting, thanks. It really is more of the same miserable attitude that containing government costs is a morally superior priority to honouring a citizen's human rights and legally-confirmed expectations of service.</p><p>TV3's The Nation also ran <a href="http://www.newshub.co.nz/tvshows/thenation/are-family-carers-getting-a-fair-deal-2016112611" target="_blank" rel="noopener noreferrer">a thorough story</a> this weekend about…</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 11:38:55 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368598#post368598</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368598#post368598</guid>
				<description><![CDATA[
						<p><q>I don’t know whether it is malice, or they simply have shit for brains.</q></p><p>the impact is the same</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 10:35:12 +1300</pubDate>
			</item>
		
			<item>
				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368596#post368596</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368596#post368596</guid>
				<description><![CDATA[
						<p><q>If there was a respectful, honest and sincere effort on the part of the Ministry to cater for people with disabilities,</p><p>If the Ministry of Health’s priority was health rather than cost and it engaged sensibly...</q></p><p>See...right there...!  </p><p>I don't know whether it is malice,  or they simply have shit…</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 10:22:38 +1300</pubDate>
			</item>
		
			<item>
				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368594#post368594</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368594#post368594</guid>
				<description><![CDATA[
						<p>Thanks for this post Rosemary. </p><p>Looking at the document, what comes across to me is that the Ministry of Health's overriding number one priority is keeping cost under control. Not, as you might expect, supporting health.</p><p>It says that the risks a disabled person may encounter by continuing to live…</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 10:03:42 +1300</pubDate>
			</item>
		
			<item>
				<title>WaterDragon</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368590#post368590</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368590#post368590</guid>
				<description><![CDATA[
						Mean spirited gits!
					]]></description>
				<pubDate>Mon, 28 Nov 2016 09:30:49 +1300</pubDate>
			</item>
		
			<item>
				<title>Public Address</title>
				<link>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368589#post368589</link>
				<guid>https://publicaddress.net/system/cafe/access-help-needed-deciphering-the-plan-for/?p=368589#post368589</guid>
				<description><![CDATA[
						<p>Discussion from blog post.</p>
					]]></description>
				<pubDate>Mon, 28 Nov 2016 09:30:49 +1300</pubDate>
			</item>
		
	</channel>
</rss>
