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		<title>Public Address | Cafe | Access: Funded Family Care from a recipient’s perspective</title>
		<link>https://publicaddress.net/system/cafe/</link>
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		<description><![CDATA[A talking shop where we put the questions and our community illuminates the issues.]]></description>
			<language>en-us</language>
			<copyright>Copyright (c) 2026 Public Address</copyright>
			

		
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=380965#post380965</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=380965#post380965</guid>
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						<p>So, with very little fanfare (and I would have missed it were I not looking for it) the Mystery of Health published the report into the <a href="https://www.health.govt.nz/publication/targeted-engagement-funded-family-care-and-paid-family-care" target="_blank" rel="noopener noreferrer">Targeted Engagement on Funded Family Care.</a></p><p>I was torn between reading those publications and reading the report into the <a href="https://www.ssc.govt.nz/sites/all/files/Report%20of%20the%20inquiry%20into%20the%20use%20of%20external%20security%20consultants%20by%20government%20agencies.pdf" target="_blank" rel="noopener noreferrer">Thompson and Clark inquiry.</a>  I…</p>
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				<pubDate>Wed, 19 Dec 2018 08:34:18 +1300</pubDate>
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				<title>Angela Hart</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=371837#post371837</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=371837#post371837</guid>
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						Another family has gone to court to try to get a fairer deal under Funded Family Care. Diane Moody looks after her adult son Shane at home. He needs constant oversight because in addition to physical problems which make him wobbly on his feet, he has the mind of a…
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				<pubDate>Thu, 30 Mar 2017 10:04:11 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=368613#post368613</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=368613#post368613</guid>
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						<p>Excuse me,  anyone out there using Funded Family Care..</p><p>I see  from their 2014-2015 Annual Report that Inidividualised Funding Host <a href="http://www3.iserve.net.nz/users/incharge/incharge.org.nz/htdocs/wp-content/uploads/2015/07/Annual-Report-14-15-web-compressed.pdf" target="_blank" rel="noopener noreferrer">Manawanui in Charge Ltd.</a> has the <a href="http://www.carers.net.nz/sites/default/files/documents/FFCSummary.pdf" target="_blank" rel="noopener noreferrer">Funding Advisory and Support Services Ltd.</a> as a wholly owned subsidiary </p><p>(FASS Ltd.  was set up to implement the Funded Family Care (FFC) Policy…</p>
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				<pubDate>Mon, 28 Nov 2016 16:16:19 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=368568#post368568</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=368568#post368568</guid>
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						<p>Excellent piece of work ...</p><p><a href="http://www.newshub.co.nz/tvshows/thenation/are-family-carers-getting-a-fair-deal-2016112611" target="_blank" rel="noopener noreferrer">http://www.newshub.co.nz/tvshows/thenation/are-family-carers-getting-a-fair-deal-2016112611</a></p><p>Oh!  The pain at seeing Uncle Tony Ryall telling porkies....and telling us where to go...</p>
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				<pubDate>Sat, 26 Nov 2016 14:33:07 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=368533#post368533</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=368533#post368533</guid>
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						<p>Funded Family Care is hitting MSM this weekend with not one,  but two programs discussing the issue.</p><p>TV3...The Nation on Saturday and TV 1's Sunday program.</p><p>I have no idea as to why now....but Andrew Geddis has a post up on Pundit giving folks the heads up.</p><p> In AG's latest…</p>
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				<pubDate>Fri, 25 Nov 2016 11:46:52 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334816#post334816</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334816#post334816</guid>
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						<p><q>Has Peter found any organisations good at pushing for what he needs changed?</q></p><p>Well.  Peter,  being one of those foolish people who did not wait until 1st April (Oh! The Irony!)1974 to accidently sustain a high spinal cord injury, has approached both TASC (The Association for Spinal Concerns) and The…</p>
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				<pubDate>Tue, 20 Jan 2015 21:02:57 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334815#post334815</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334815#post334815</guid>
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						Yes. We have heard from some of them already. It amazes me how people are expected to risk so much to secure change for others. Our organisations fail us fundamentally. Shameful.
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				<pubDate>Tue, 20 Jan 2015 20:26:57 +1300</pubDate>
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				<title>Hilary Stace</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334814#post334814</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334814#post334814</guid>
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						Thank you for expressing this so vividly. Says a lot about how unsafe the system is for people who need support. You are not alone. There are several other families  and individuals out there in a similar position.
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				<pubDate>Tue, 20 Jan 2015 20:19:53 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334813#post334813</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334813#post334813</guid>
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						Thank you for contributing to this conversation. It is your life and your choices that count most of all.
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				<pubDate>Tue, 20 Jan 2015 19:29:46 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334812#post334812</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334812#post334812</guid>
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						Has Peter found any organisations good at pushing for what he needs changed?
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				<pubDate>Tue, 20 Jan 2015 19:27:50 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334811#post334811</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334811#post334811</guid>
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						<p>It's one of the reasons our community is so ineffective politically compared with others a fraction the size.</p><p><em>Yes sir, no ma'am, three bags full.</em> Deeply ingrained. That or blazing justified anger, and little in between.</p>
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				<pubDate>Tue, 20 Jan 2015 19:22:51 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334810#post334810</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334810#post334810</guid>
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						<q>As you will be aware, we cripples are expected to be ostentatiously grateful for every pat on the head we are offered, to rock no boats, bite no hands, and to swap sensible English for euphemistic jargon. The daughter in question (that would be me) is concerned about the potential…</q>
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				<pubDate>Tue, 20 Jan 2015 19:17:25 +1300</pubDate>
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				<title>walrus</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334802#post334802</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334802#post334802</guid>
				<description><![CDATA[
						As you will be aware, we cripples are expected to be ostentatiously grateful for every pat on the head we are offered, to rock no boats, bite no hands, and to swap sensible English for euphemistic jargon.  The daughter in question (that would be me) is concerned about the potential…
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				<pubDate>Tue, 20 Jan 2015 15:44:20 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334787#post334787</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334787#post334787</guid>
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						<p>"ffc withheldffc"....why are you not posting under your real name?</p><p>Just asking.</p>
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				<pubDate>Tue, 20 Jan 2015 10:09:22 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334752#post334752</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334752#post334752</guid>
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						<p><q>what about Corrections? </q></p><p>Anne Tolley having had that portfolio and now MSD could be interesting when she considers the relative willingness to invest in employment/skills training.</p>
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				<pubDate>Mon, 19 Jan 2015 13:34:03 +1300</pubDate>
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				<title>ffc withheldffc</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334745#post334745</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334745#post334745</guid>
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						<p>Except for ACC and National Super recipients who are recognised as being entitled.<br />It seems to me that essential disability supports should be an entitlement also.</p>
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				<pubDate>Mon, 19 Jan 2015 12:49:33 +1300</pubDate>
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				<title>Hilary Stace</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334723#post334723</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334723#post334723</guid>
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						Seems entitlement is a banned word these days for all types of state support – shows how far we have come from the ideals of the welfare state.
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				<pubDate>Mon, 19 Jan 2015 10:54:34 +1300</pubDate>
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				<title>ffc withheldffc</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334716#post334716</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334716#post334716</guid>
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						<p><q>punishment for daring to demand equal rights.</p><p></q><br />Lack of entitlement, that is lack of right to support services, was brought home to me at a meeting with a senior MOH person presenting on IF with respite. I used the word " entitlement"  in a context where it was the correct…</p>
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				<pubDate>Mon, 19 Jan 2015 09:34:50 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334712#post334712</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334712#post334712</guid>
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						<p>Hah!  Yes a bit.....BUT...the aged care sector is somewhat relying on the the WW2 generation and the Post WW2 boomers.  Both groups will demand the Gummint take care of them 'because we have fought and we have paid our taxes'.  And fair enough.</p><p>For the same reason ACC claimants demand…</p>
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				<pubDate>Mon, 19 Jan 2015 00:07:10 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334711#post334711</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334711#post334711</guid>
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						<p><q>FFC was NOT what the case was about</q></p><p>I thought govt's fear was a precedent broader than disability services (eg: aged care) about what they could legally offload onto family/community rather than state or private service providers. Big changes in MSD services probable soon, including PPP-style long-term agreements. Clearing the…</p>
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				<pubDate>Sun, 18 Jan 2015 20:20:52 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334710#post334710</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334710#post334710</guid>
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						<p>Sacha,  even if they extended FFC to spouses and partners....I wouldn't touch it with a ten foot pole.</p><p>Those family carers who were being paid through 'backdoor deals' enjoyed (and some still enjoy) $17 per hour and up to at least 56 hours per week.</p><p>FFC was NOT what the…</p>
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				<pubDate>Sun, 18 Jan 2015 20:08:12 +1300</pubDate>
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				<title>Rosemary McDonald</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334709#post334709</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334709#post334709</guid>
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						<p>Great article about an appalling piece of Ministry of Health work. </p><p> It required a particular level of malice to construct  FFC.</p><p>If nothing else,  as you say,  you are better off financially,  and you enjoy the dignity of paid work.</p>
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				<pubDate>Sun, 18 Jan 2015 20:01:49 +1300</pubDate>
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				<title>ffc withheldffc</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334704#post334704</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334704#post334704</guid>
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						Thanks Hilary, we can but hope.
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				<pubDate>Sun, 18 Jan 2015 13:13:54 +1300</pubDate>
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				<title>ffc withheldffc</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334703#post334703</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334703#post334703</guid>
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						Kia ora Sacha
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				<pubDate>Sun, 18 Jan 2015 13:12:22 +1300</pubDate>
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				<title>Hilary Stace</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334700#post334700</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334700#post334700</guid>
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						Thanks for this insider perspective. I hope those reviewing this policy listen.
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				<pubDate>Sun, 18 Jan 2015 11:36:23 +1300</pubDate>
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				<title>Sacha</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334698#post334698</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334698#post334698</guid>
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						<p>Thank you. Interesting to hear another angle on this process that Rosemary <a href="http://publicaddress.net/access/family-carers-case-five-years-on/" target="_blank" rel="noopener noreferrer">wrote about recently</a>. </p><p>I'm hoping people and organisations can push the government to widen eligibility and reduce the ongoing compliance effort for disabled people and our families.</p>
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				<pubDate>Sun, 18 Jan 2015 10:59:16 +1300</pubDate>
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				<title>Public Address</title>
				<link>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334697#post334697</link>
				<guid>https://publicaddress.net/system/cafe/access-funded-family-care-from-a-recipients/?p=334697#post334697</guid>
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						<p>Discussion from blog post.</p>
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				<pubDate>Sun, 18 Jan 2015 10:59:16 +1300</pubDate>
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