Public Address | Cafe | Access: Disability Stakeholders

BDB Inc

Sat, 17 May 2014 15:13:20 +1200

As far as the "Earthquake prone buildings" go, the way they classified the buildings has no basis in science or fact. I heard if the select committee does not seriously rethink it upon review of this evidence that there will be a group law suit filed by building owners.

BDB Inc

Sat, 17 May 2014 12:04:21 +1200

In the news today I heard about the neo-nazis in the Ukraine and then I read the building bill reform (that you had a link to ) which is allowing buildings to have no fire escape or access for disabled people.
Many Bills have been past by the govt in…

Sacha

Tue, 13 May 2014 20:55:18 +1200

However, the Strategy was published in 2001 and I haven't seen much progress in general society in the use of these terms.

Because nobody ever made that their purpose – even though it was a pretty obvious need.

Sacha

Tue, 13 May 2014 20:53:51 +1200

Yes, the way successive governments engage with community organisations has been fraught, to be polite. Another reason we need to nourish genuine community networks that reach beyond such organisations.

Angela Hart

Tue, 13 May 2014 13:49:00 +1200

Returning to the original post. I've just read an academic study which puts a different cast on DPOs, Service Providers, Agencies and even Disability Change Movements in New Zealand.
http://www.victoria.ac.nz/sacs/pdf-files/Fears-constraints-and-contracts-Grey-and-Sedgwick-2014.pdf

The impact of the way our governments deal with these organisations is to hush our voice.

Angela Hart

Tue, 13 May 2014 10:15:01 +1200

The NZ disability strategy is here:
http://www.odi.govt.nz/documents/publications/nz-disability-strategy.pdf
To quote, it says:

"Disability is not something individuals have. What individuals have are impairments. They may be physical, sensory, neurological, psychiatric, intellectual or other impairments.
Disability is the process which happens when one group of people create barriers by designing a world…

BDB Inc

Mon, 12 May 2014 20:07:55 +1200

Sorry Sacha I didn't and don't understand Martin's speak on disability vs impairment, how individuals people respond to one word vs the other or the difference in the two similar words.

Or how a change in labels will benefit humanity in that it would teach to not see differences.
The…

Sacha

Mon, 12 May 2014 19:19:33 +1200

I addressed disability and impairment in my first Access post – and in more detail on my own blog, relating it specifically to the NZ Disability Strategy and the UN Disability Convention.

Sacha

Mon, 12 May 2014 19:15:39 +1200

I object to certain disability language not because I am personally 'offended' but because some word choices are not helpful in changing what needs to be changed.

People respond as we do for more than one reason, some of them collective or strategic rather than individual.

BDB Inc

Mon, 12 May 2014 17:57:27 +1200

I found one person/web site who said:
" What is the difference between Disability and Impairment?
• Disability is a generic term whereas impairment is specific.
• Disability is at a non-medical level whereas impairment is at a medical level.
• Impairment is an abnormality in the structure or function…

Angela Hart

Mon, 12 May 2014 13:59:39 +1200

I take your point about some offense being more about the person perceiving it than the person allegedly causing it. A lot of the time I'm not offended when others think I should be, their problem not mine. What does offend/anger/upset me is when people set out to hurt; if…

BDB Inc

Mon, 12 May 2014 10:28:02 +1200

Then someone else had better explain why people get offended by words and the ego identity. I do hope this explains what I was trying to say.

http://terricole.com/offended-say-hello-to-your-ego/

http://www.positivelypositive.com/2013/05/24/offended-say-hello-to-your-ego/

Sacha

Mon, 12 May 2014 09:16:05 +1200

offended

As I said to you on the earlier thread, the only person raising the notion of personal offense has been you. Though Martin has introduced identity politics now, so he may want to address it. Or not.

Sacha

Mon, 12 May 2014 09:14:53 +1200

underlying feelings and thoughts of inferiority

interesting diagnosis. do you find it makes people receptive to your understanding of the world?

BDB Inc

Mon, 12 May 2014 09:08:41 +1200

White "wiggers" all use the "n" word, white people use it now this increased usage of the "n" word came from a jointly from the the rap music & movie industry( Tarantino).
http://www.metroactive.com/papers/metro/04.09.98/cover/nigger-9814.html

On the closer to home issue (but on the wrong thread).
Why do you get offended if non…

Martin Sullivan

Sun, 11 May 2014 23:03:26 +1200

I think you missed my point BDB Inc; disabled people did not reject the word 'disabled'; we embraced it' we were not going to be oppressed by it but spoke of disability pride and proudly claimed 'disabled people' as our preferred identity as a political act as well as an…

Rosemary McDonald

Sun, 11 May 2014 14:47:45 +1200

and Martin Sullivan.

Angela...I love "PLOD." Seriously needs to be on the alphabet soup list of other 'sector' acronyms.

Martin....the 'continuum', I believe is wedge shaped, with the" altruistic services & people " and the very thin end.

I'm currently working on an acronym (because we're nothing without them!) to describe…

BDB Inc

Sun, 11 May 2014 12:55:03 +1200

In the 60s & 70s when those involved in the civil rights movement just rethought the meaning of the word “black” ( “black is beautiful” ) the word black remained the same. Only the minds accepting(not feeling offended) by it changed. In accepting it they changed it.
Interestingly now different "black"…

Angela Hart

Sat, 10 May 2014 20:04:26 +1200

I've always conceived of the 'disability sector' as that great big industrial/service complex which exists on a continuum from those wanting to make money out of disability and disabled people to those altruistic services & people who are there to support us in the decisions we make about how we want…

Sacha

Sat, 10 May 2014 18:05:32 +1200

the subversive act of redefining words such that they are turned on their head to have a positive meaning.

I wouldn't mind at all if that's what it was. Makes it harder to bring along people who are not specialists in the field.

Martin Sullivan

Sat, 10 May 2014 17:14:36 +1200

I get where you're coming from Sacha about the confusion resulting from the subversive act of redefining words such that they are turned on their head to have a positive meaning. (Some commentators refer to this as oppressed minorities reclaiming pejorative terms in an act of defiance and liberation.)

You…

BDB Inc

Fri, 09 May 2014 17:59:02 +1200

So after semantics play (and our fixations on words and tripping up on them) who do you think are "stakeholders" in the- social- response- to- impairment ?

2) Should we have a shadow govt and shadow reports? Should our human rights (under the UN convention) just be "optional"?

3) Optional…

Sacha

Fri, 09 May 2014 13:01:58 +1200

oh, and thanks for coming here, Martin.

Sacha

Fri, 09 May 2014 13:01:16 +1200

‘the disability’

which usually means exactly the same as "impairment".

Other than "disablement" are there words for the social process that are not stupidly the same as the old word for the personal component? Whoever decided to use the same one didn't do us all any favours.

Martin Sullivan

Fri, 09 May 2014 12:26:53 +1200

From my perspective Lucy, neither the children nor the parents have 'the disability'. Disability, like racism and sexism, is imposed upon a particular group of people, viz those with impairments; it is not an attribute of individuals but social oppression. Or, in other words, disability is the negative social response…

Hilary Stace

Fri, 09 May 2014 08:20:21 +1200

DPA is consulting on the DPO Shadow report to the United Nations

BDB Inc

Thu, 08 May 2014 08:30:11 +1200

Humanity is one.

Unfortunately with words we have distorted facts and we have divided everyone into labels and then measured their worth based only on the values of those in power.
Not taking( and acting on) input from those that live with the disability funding decisions is like having a…

BDB Inc

Tue, 06 May 2014 13:52:36 +1200

Canonball!
Everyone is.

Who has an interest in disability, some people don't they are in the grips of self interest("rest of society be damned" personality types). Many do not know there is a problem for the growing number of disenfrachised kiwis, and if they knew how bad it is for…

Angela Hart

Tue, 06 May 2014 09:53:59 +1200

Yet when agencies claim to have "consulted the sector" guess who they have spoken with?

yes, it rankles that groups representing paid support services purport to represent disabled people.

Angela Hart

Tue, 06 May 2014 09:51:55 +1200

most parents of children with disabilities have had to develop a heightened sense of risk for their children. The consequences of failing to recognise the risks and mitigate them can be fatal.

As a parent of a disabled (now adult) daughter, one of the most difficult things was allowing/encouraging ordinary…

Rosemary McDonald

Mon, 05 May 2014 11:58:48 +1200

Or when the spouse or partner of a disabled person avoids risk so they are fit and able to continue giving vital support.

Or when spouse/partner of disabled person with risk- taking tendencies tries to mitigate the risks as to avoid even further impairment.

Seriously though...Kiwis do not have a…

Rosemary McDonald

Mon, 05 May 2014 11:10:51 +1200

http://www.register.charities.govt.nz/CharitiesRegister/PublicAnnualReturn?nocId=887d91f1-b178-e311-8f2f-00155d0d1916&charityRef=IHC00002-4&accountId=bc751b66-268a-dc11-98a0-0015c5f3da29&searchId=872ce982-5966-443a-b0f6-206ce3b04296&nocRef=IHC00002-4AR004

Sacha...I confess to feeling more than a little sensitive at the moment, having be cast forever into the lowest section of NZ society...ie; those denied the right to take their most significant issue to the courts, by virtue of the PHDAct amendment.

I have spent the past three years…

Sacha

Mon, 05 May 2014 09:37:52 +1200

The notion of a sector as providers rather than ‘consumers’ is a nonsence.

Yet when agencies claim to have "consulted the sector" guess who they have spoken with?

Sacha

Mon, 05 May 2014 09:36:55 +1200

Ooh, that sounds tricky.

Lucy Telfar Barnard

Mon, 05 May 2014 09:28:07 +1200

No doubt that too, but I was mainly thinking of when disabled parents don’t “let” (want to let) their children take risks or live their own lives because of expectations that their children will provide them with support, beyond or earlier than what parents without disabilities may expect.

Sacha

Mon, 05 May 2014 09:22:04 +1200

You mean where the children don’t let their disabled parents take risks?

Lucy Telfar Barnard

Mon, 05 May 2014 09:19:00 +1200

Extra reliance on family for support can amplify the usual struggles most parents face letting their children take risks and live their own lives
This line reads as though it was written about families where it is the child(ren) who has the disability, so I thought I'd note that it…

Sacha

Sun, 04 May 2014 23:01:02 +1200

if the Charities Commission website is right

and please link

Sacha

Sun, 04 May 2014 22:59:45 +1200

lol

please do elaborate

Rosemary McDonald

Sun, 04 May 2014 22:47:56 +1200

Sacha...."Service providers deliver a variety of services focused on the immediate needs of disabled people and/or families, often focused on particular impairments. These are the mostly non-profit organisations familiar to the public over decades, such as CCS, IHC,...."

Idea Services (IHC) were paid over $240,000,000 for providing 'services'...and made a…

Sacha

Sun, 04 May 2014 22:36:21 +1200

thank you. fair enough.

Leilani Thompson - Rikys

Sun, 04 May 2014 22:29:51 +1200

I disagree with your definition of sector. To me people with disabilities are the primary stakeholders of that sector. The notion of a sector as providers rather than 'consumers' is a nonsence. Rather than a misunderstanding of what a sector is, the choice to use sector as including people with…

Sacha

Sun, 04 May 2014 21:40:39 +1200

Cynicism is such a risk. :)

Hilary Stace

Sun, 04 May 2014 21:37:56 +1200

Hopefully, they care about making things better, but not necessarily collectively. It could be just improving one's own salary as a provider of services.

Sacha

Sun, 04 May 2014 21:03:45 +1200

I use the term 'disability sector' to mean all those who have an interest in disability issues, as opposed to those who haven't

So, like when I say 'disability movements'?
The more-motivated.

Hilary Stace

Sun, 04 May 2014 21:00:41 +1200

I use the term 'disability sector' to mean all those who have an interest in disability issues, as opposed to those who haven't. Can be personal or professional. So it can include anyone from disabled people to agencies providing services, to researchers or even journalists. Many of them are likely…

Public Address

Sun, 04 May 2014 21:00:41 +1200

Discussion from blog post.