Public Address | Cafe | Access: Cause, care, cure and celebration https://publicaddress.net/system/cafe/ en-us Copyright (c) 2026 Public Address Hilary Stace https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=317283#post317283 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=317283#post317283 Sun, 13 Jul 2014 21:44:56 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=317266#post317266 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=317266#post317266 I'm reviving this post because I'm not sure where else to put this latest effort from the Ministry of Health to improve the lives of disabled people.


http://www.stuff.co.nz/national/health/10261601/Drugs-tested-on-mentally-disabled

I really think this needs some discussion.

Perhaps some reaction?

]]> Sun, 13 Jul 2014 08:56:14 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312832#post312832 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312832#post312832 Change is constant so hope for change is likely to happen- I don't want to sound like these people leading the direction of healthcare can't change because they can. It changed from healthcare into a funding model.
I just think that they need to become aware of the facts, the…

]]> Mon, 12 May 2014 14:30:28 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312790#post312790 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312790#post312790 I'm heading in the same direction as you with regard to the health system being broken, but I need to retain some hope because we will need it again.
There are good people within it but you spin the wheel and take yer chances....
I do wonder if everyone gets…

]]> Mon, 12 May 2014 11:07:24 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312789#post312789 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312789#post312789 If the HDC said in his book 200 med providers should be struck off that is from his findings so his are not mine.
Post 4/4/6 no dr's treated my acute and serious life threatening neurological, internal or orthopedic injuries , they used all their combined medical knowledge to not…

]]> Mon, 12 May 2014 10:53:28 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312785#post312785 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312785#post312785 Mon, 12 May 2014 09:59:18 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312784#post312784 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312784#post312784 In theory NZ use to have the better ideas for a health system than the USA, a once open system when mistakes are made they are acknowledged (without liability) and remedied .
Now mistakes are not acknowledged and there are no watchdogs.
Still have no liability but roles of the…

]]> Mon, 12 May 2014 09:38:04 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312772#post312772 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312772#post312772 Perhaps NZ medical casual behaviours re diagnoses and treatments relate to ACC and no liability for mistakes?

Maybe. Certainly its very difficult in NZ to hold medical people to account for their actions or lack of them. While we don't want the US situation where they perform every medical test…

]]> Sun, 11 May 2014 23:58:26 +1200 debunk https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312763#post312763 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312763#post312763 Sun, 11 May 2014 19:12:04 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312762#post312762 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312762#post312762 Great point not discussed as the medico industrial label industry does not want to stop labeling individuals .

Some specialists in 2006 said I would die, when I did not (even with the three months of needed ICU care removed) they decided ( even with an in house ethical specialist)…

]]> Sun, 11 May 2014 19:03:10 +1200 debunk https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312761#post312761 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312761#post312761 Sun, 11 May 2014 17:17:46 +1200 debunk https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312759#post312759 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312759#post312759 Sun, 11 May 2014 16:09:54 +1200 Marc C https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312740#post312740 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312740#post312740 Sat, 10 May 2014 23:54:41 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312734#post312734 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312734#post312734 Sat, 10 May 2014 20:07:58 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312333#post312333 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312333#post312333 Ethics can be fun :)

Glad to hear it. Because it is really important that we talk about ethics, including bioethics, and try and think and behave ethically in anything to do with disability.

]]> Tue, 06 May 2014 20:01:49 +1200 Sacha https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312331#post312331 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312331#post312331 But if we also take away people who can focus single-mindedly on things that fascinate them, people who get wildly exuberant (without drugs) and make mad, passionate art about how they feel,people who stare into the abyss and come back newly enthusiastic about what they want to do, what are… ]]> Tue, 06 May 2014 19:55:22 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312113#post312113 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312113#post312113 I am glad you can pointed out the medical model "fix" you idea, they want to have total control ( leads to your disempowerment) that is what happens when modern medicine meets neuro diversity.
You get reduced to a label(s) of someone else's opinion which effects (in children it forms)…

]]> Mon, 05 May 2014 09:40:28 +1200 Sacha https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312099#post312099 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312099#post312099 Should I have to be cured so that I don't make you uncomfortable? Isn't that your problem?

Well put.

]]> Sun, 04 May 2014 22:35:03 +1200 Moz https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312097#post312097 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312097#post312097 to accept them in the moment so you can feel peace is all that is needed. All underlying negative thoughts and feeling of non acceptance will be non verbally transmitted to the person.

That really resonates for me. Well put!

The big thing is that disabilities are a spectrum, and…

]]> Sun, 04 May 2014 21:44:19 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312060#post312060 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312060#post312060 Don't apologise for the word 'fit'. The word usage is appropriate.
My thinking was expressed in my first response .

Haven't those "outside" been the ones deciding how we are to understand and treat autism? When they do not fully understand it and to me growing number of neurological developmental…

]]> Sat, 03 May 2014 17:21:27 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312047#post312047 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312047#post312047 Sat, 03 May 2014 12:57:34 +1200 Margaret Moana McGregor https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312046#post312046 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312046#post312046 Sat, 03 May 2014 11:58:55 +1200 BDB Inc https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312045#post312045 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312045#post312045 I do not understand the question "where do I fit" .
I have once been tested to exhibit "aspie -ness" (and much more neurodiversities)
Where do I fit? I don't.
I am here and now .Any placement by diagnosis(opinions) into "this" or "that" would reduce who I am (my being)…

]]> Sat, 03 May 2014 11:01:17 +1200 Hilary Stace https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312036#post312036 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=312036#post312036 Sat, 03 May 2014 08:51:41 +1200 Rosemary McDonald https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311997#post311997 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311997#post311997 Cause and Cure and Care...

Hmmmm.

If finding a cause leads to a cure requiring ongoing treatment through therapy or medication then yes...$$$ will be directed towards research.

But, if finding a cause leads to prevention....thereby eliminating the need for long term medication....might not be so attractive for funders....who are…

]]> Fri, 02 May 2014 15:47:04 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311992#post311992 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311992#post311992 Fri, 02 May 2014 15:21:21 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311986#post311986 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311986#post311986 http://www.health.govt.nz/system/files/documents/pages/cabinet_paper_-_proposed_response_11_december_2012.pdf ]]> Fri, 02 May 2014 14:34:27 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311985#post311985 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311985#post311985 Meanwhile disabled adults and their family carers had to fight in the courts for a decade for the family carers to be paid on the same basis as strangers coming into the home.

But although they won all the court cases, they haven't actually won, have they?
Funded Family Care…

]]> Fri, 02 May 2014 14:31:47 +1200 Angela Hart https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311979#post311979 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311979#post311979 Where do I fit?
I take the view for most aspects of life that extremes are bad and balance is needed.
For instance, while I can see a great deal to celebrate in some aspects of autism and some of the people in certain parts of the spectrum, I don't…

]]> Fri, 02 May 2014 14:17:47 +1200 Public Address https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311978#post311978 https://publicaddress.net/system/cafe/access-cause-care-cure-and-celebration/?p=311978#post311978 Discussion from blog post.

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