Posts by walrus
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Access: Disability as a wicked policy problem, in reply to Angela Hart,
Wow, the topic doesn't even rate a proper proof-reader, it would seem. #signofthetimes
It's eerie hearing my words echo in this report; I seem to have been pretty much the only FFC "caree" able and willing to speak to these researchers.
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Ouch! recommended a few years back that the question "what happened to you?" be answered with "I angered a wizard". I try to remember that one, just in case. But mainly I get "don't get a speeding ticket!", and unfortunately if I'm pushing my wheelchair fast enough to earn that one I can't spare a finger to reply.
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Access: Funded Family Care from a…, in reply to Rosemary McDonald,
As you will be aware, we cripples are expected to be ostentatiously grateful for every pat on the head we are offered, to rock no boats, bite no hands, and to swap sensible English for euphemistic jargon. The daughter in question (that would be me) is concerned about the potential ramifications of being branded trouble-makers. We are in large part dependent on the goodwill of the NASCs and the MoH in order to remain in this new Elysian lifestyle that enables such wonders as having some money in the bank to replace the next household appliance that dies, and being able to afford the petrol to get to my twice-weekly leisure activity of choice.
Beyond that, there is the more distant future. One day, assuming I don't pop off first, Mum will become temporarily or permanently unable to provide my care. I need a certain level of care by very capable people in order, frankly, to remain alive. Those same NASC and MoH people who have the power to revoke our FFC arrangement also have the power to reduce my funded care to a dangerously low level and to institutionalise. If I'm on record as being high-needs with a "difficult" family, might that not affect decision-making? I don't want to take the risk. I can't afford to take the risk.